Lobular , lumpectomy results different to initial scans

  • 0 replies
  • 392 subscribers
  • 15 views
  1. Hi All, looking for anyone who has had a similar experience - I’m ER postive , her - , intially my tumour size based on MRI / mammogram / ultrasound was 20mm grade 2 however after surgery I’ve got a huge shock as it’s now 50mm , & in those previous scans lymnodes looked clear however 1 of the 5 has tested positive . I getting re -excisin next week to achieve clear margins & the most worrying a CT to check if this has spread to other body parts . I’m petrified . I’m 38 years old . Chemo is most likely but also concerned as I read a lot that lobular doesn’t respond well to this  ( they will get an oncotype d x test ) anyone had similar experience ? Please say there is hope that if you had it spread to 1 node that it wasn’t in other parts - I’m so scared & my hope is twindling after each blow x