Phesgo itch

Hi Karen I tried everything until doctor prescribed adex gel it really did help wishing you all the best with the rest of your treatment. XX

Oh really? Thank you Fiona. I’m seeing the oncologist tomorrow so I’ll def ask her about that. Cheerie! Xx

Hi I’ve been on Phesgo for a while, really suffered with rash/itchy arms, neck & shoulders. On strong antihistamines but they don’t resolve the itch. Tried having drugs intravenously helped a little but still itchy rash! Back on Phesgo injection and the itching continues so will look to try the adex gel. Struggling with runny nose and eyes also; eyes very itchy - anyone struggled with these symptoms and if so anything helped? 

I found it incredible that neither my oncologist or any of the breast cancer nurses had never come across this itch before.
I also tried various antihistamines which didn’t touch it. A former nurse that I volunteer with suggested drinking lots and lots of water to try and flush it through my system. unfortunately I think it’s a matter of time but it’s a good idea to try the gel.  I’ve been referred to a dermatologist, but since  it’s not on the surface of my skin I feel it’s a bit pointless.  It’s underneath the skin - hard to explain to anyone that’s not got it. Having too many layers of clothing on or being in a hot room def exacerbates it. 
if you find something that works, please share!  Good luck 

Strange because my oncologist hasn’t come across it before either. Apparently no one they treat with Phesgo suffers with the same irritation. I was referred to dermatologist but they didn’t really have any idea; some form of pruritus, none of the creams they prescribed worked so gave up on a dermatologist. I scratch so much bumps appear and spots pop up scab and then scar my skin.  Nightmare! 

Cynically I think they don’t acknowledge it because they don’t know how to deal with it. yes I’ve broken my skin as well. The dermatologist (through a letter) suggested Dermacool Forte cream  not sure if it’s worth speaking to your GP about that?  It may help. 
but yes it is a blinking nightmare.  And once you start scratching…aaargh.  Can go on for hours! 

Hi

I have been on Phesgo for quite a while too and suffering the same symptoms

very itchy skin on arms runny nose when eating  and watery eyes also my nails do not grow .