Hi i was diganosed with Stage2 ILC on 6th July, its a 4cm by 4cm mass which im shocked at as had a mammogram 18months before and it was clear and my consultant said its slow growing?
Initial MRI Contrast Scan shows no spread to lympth nodes however until some of them are removed we wont know for certain.
Im due to have it removed on 7th September but im afraid it has spread as all my glands are swollen in my neck and discomfort in the neck as achey the BC Nurse doesnt seem concerned when i mentioned it.
I have had to stop all my HRT medication that has now left me in constant joint pain, i go swimming 5 times a week and go for a 20min (cant manage any.more due to joint pain) every weekday. So trying to stay active.
Im informed by the BC Nurse that i wont be able to use my arm for months due to the lympth nodes being removed and it can take 8-10months to get most of the feeling back which worries me.
Im extremly lucky as have a very supportive husband, family & friends around me but sometimes i just would like some me time as feel a bit smothered at times and i know its just because they love and care for me.
Sorry to rant but even just typing this is helping.
Hello Mightyduck12
I am sorry you are going through this. When you have surgery are you having a sentinel node biopsy or an axilla clearance? If they think your lymph nodes are clear, they usually just take the sentinel node and a few others close to it for testing. I had this done and had no loss of feeling. There was also no stipulation not to use the arm for months, although I needed to limit what I did for the first few weeks. It may be different if you are having a clearance. If so, it may be worth seeking more understanding of why that is being recommended. I do think it’s important to keep up water activity to help with your joint pain. If arm issues mean you can’t swim, could you try Aqua or Aqua Zumba classes? I found them incredibly helpful for managing hip arthritis prior to my hip replacements.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
I am a Macmillan volunteer.
I have metastatic Triple Negative Breast Cancer, in remission
If it turns out chemo is on the cards then request a portacath rather than a PICC line so you can continue to swim.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
I am a Macmillan volunteer.
I have metastatic Triple Negative Breast Cancer, in remission
