Hi newly diagnosed with ER/PR positive grade 2 invasive ductal carcinoma

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I am Autistic with ADHD, fibromyalgia and MECFS. Long term treatment resistant depression and CPTSD. I'm less concerned about the cancer, but more concerned about the impact stopping HRT will have on my other conditions.

Can anyone relate, been through it?

  • Hi  

    I am one of the Community Champions and would like to welcome you to our community. It must be very difficult dealing with a breast cancer diagnosis on top of your existing health conditions, and I quite understand why you are concerned about the impact of stopping HRT. It might be helpful to speak with one of our nurses, if you feel able. Their contact number is below. Unfortunately I don’t have any direct experience to offer as I was through the other side of the menopause when diagnosed, and also don’t have an oestrogen responsive cancer. By replying I have bumped your message back to the top of the page and I hope someone with relevant experience sees it and responds to you. 

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    I am a Macmillan volunteer.

    I have metastatic Triple Negative Breast Cancer, in remission

  • Thanks for responding. I have emailed one of the nurses so will hopefully hear back soon.

  • Hi Hayesa,

    I'm sorry to hear your news. In case this helps I was diagnosed in January with high grade DCIS and also a small invasive ductal cancer and also had to cease HRT. My consultant suggested a gradual reduction over a couple of weeks and that worked well. To be completely honest I was dreading it too and really panicked although I'd not had it for long. I found it to be absolutely fine it had no impact on sleep and I actually found my mood improved a lot as I think I was very intolerant to the progesterone in the HRT.

    I've had 2 surgeries and radiotherapy and now on Tamoxifen, so far thats been fine too, I'm trying to work out which time of day is best to take it but apart from feeling a bit hot and low at points its been fine! I've also been trying to walk every day which I think has helped too.

    I would honestly go as far to say that I felt better without HRT so hopefully you will too, I hope this helps and take care.

    Karen