I had my first infusion yesterday. I'm due to have one every 6 months for 3 years. When I got home yesterday I felt fine. Today is another matter! Every bone and muscle hurts and I have a horrendous headache. I guess they are the flu like symptoms my information sheets talked about. This morning I was sooooo cold but now I'm boiling hot. Have fallen asleep on the sofa twice! I have taken paracetamol and ibuprofen which only helped a little. Hoping things will improve in the next day or 2 and not be so bad next time or am I clutching at straws.
After my first infusion I had immediate and awful headache. Within 20 minutes I was cold and shivering so much it felt like I was fitting. Fortunately, almost exactly 24 hours later I felt fine again, just a bit drained.
i hope that after a night or two of sleeping well you’ll feel ok.
Hi Summerskies,
I have only had one infusion so far in November. I felt a bit flu and achy for at most 2 days. I have been fine since.
Hoping your symptoms settle soon xx
Thank you. I actually slept better last night than I have in a long time. I'm going to have an early night and hope there is an improvement in the morning.
Thank you. Early night tonight and hope tomorrow will be better.
Thank you. Encouraging that your symptoms were milder 2nd time.
I also had Zoldronic acid. The first one the flu symptoms were horrible. Then the 2nd infusion much less symptoms and 3 even milder
I wish I had known how bad it was going to be. I did read all the stuff I got from the oncologist but I wasn't really prepared. Today is a bit better than yesterday as the pain seems to be just in my arms, hands and shoulders. Still have the headache but have had one every day since starting on Letrozole in December. Hopefully like you the symptoms will lessen as time goes on.
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