I was diagnosed with Stage 2 breast cancer in Nov, I've had a lumpectomy and sentinel node removal. Nodes were all clear , tumour was grade 3 so had to wait on results from America which I got 2 weeks ago, was told have to wait 6 weeks for CT scan, so was surprised to get phone call with appointment this Wednesday, then onto radiotherapy for a week.
I have to admit to still being shell shocked by it all, along with being scared and frightened by it all.
The hospital and breast cancer nurses are amazing along with the Macmillan hub at the hospital.
I realise everyone's journey is different but I find it difficult to talk about this and because others can't see anything, eg if it was a broken arm or leg, the understanding would be there, there isn't the kindness and consideration given, I struggle and have to justify myself which is hard especially as I find it hard to accept my breast doesn't look and never will be the same again.
My darling husband is amazing but it's difficult sometimes to get how I feel across to him. I jump from being ok to down, fairly frequently and being on and getting used to Letrozole is another challenge.
Thanjs for letting me ramble
Hi Zizzie,
You are allowed to rant on this forum. We are all in the same boat. It's a scary time very anxiety provoking. Moods up and down.
Like you I had breast cancer diagnosed in May. I have since had lumpectomy and sentinels removed, chemo and radiotherapy. I am now on Letrozole.
Not only have you to deal with the fears of the cancer you then have the side effects of the Letrozole.
Thankfully I only have some flushes, joint stiffness and bone pains armt time. I manage it as I tell myself this wee pill is keeping the cancer away.
The macmillan nurses and cancer care are very supportive as well as this forum.
I wish you well in your recovery. Feel free to ask questions, have a wee moan. Others on here have been where you are and will support you xx
Hi Missmolly I too was diagnosed with Breast Cancer in May last year and had the op in September ‘24. I have had a week of Radio therapy which has given me very dry skin in the area and I use a good cream for that. The site is still quite hard and discolored which I think will always be there. I tend to get very down and weepy now and my patience is thin at times. I live on my own so don’t have much contact with anyone apart from one of my children, she has a stressful job and has her own life to lead. I am on Letrozole , I can’t take accord it gave me an awful headache so changed to another brand which is much better, the worry is getting the same brand again. I need a mammogram every year so I will have to arrange that. I hope you and everyone one else going through this have a great recovery. Ps do we ring the cancer nurse or do they contact us to see how we are doing? Enjoy your day.x
Hi Jillywill
Ask your GP to write the brand you can tolerate on your prescription to make sure your pharmacist orders that brand in.
Your cancer care team organise your yearly checks.
My BC nurse called me to check in in January. She gave me her number to call her if I needed anything or had any concerns.
I'm still experiencing discomfort under my arm and breast. My head goes to its come back. But my rational brain then reminds me I've had all treatments and it's most probably scar tissue or side effects from Letrozole.
It can be a lonely and scary experience even after treatment. I think I was more reassured when attending for blood tests and treatments. Although I do not want to need all that again.
I wish you well in your recovery. Sending hugs xx
Missmolly, my GP already puts the brand on the scrip but it doesn’t guarantee I’ll get it if the pharmacy can’t get it. Once that happens then ringing around other pharmacy that say they can’t get it either so your stuck as where I am the pharmacist are not that helpful. Can I ask how many packs you get at a time as some people can be given about 6 packs in one go which makes sense if you are on them for 4+ years. I tend to get dizzy some days and really tired, I thought that would wear off by now. Take good care and look after yourself, hugs to you too.xx
Hi Jillywill,
I only get 2 packs at a time it's a nuisance they know I've to be on them for 5 years but won't increase amount at anyone time.
I get tired easily and light headed also.
My mood is up and down. Xx
That is silly isn’t as we are not stupid plus it helps get the same brand needed, I feel if I can’t get the brand needed I will have to go without until I can get them again as I have quite a few allergies. Can I ask what area you are in, I’m in Surrey.xx
Hi Jillywill,
Yes you'd think it was easier to give a decent supply save running back and forth.
I'm in Ayr Scotland. Xx
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