Hi all, would love to say Happy New year, but let’s face it, if we are new to this group then it’s not started great
I was diagnosed with 2 tumours in my left breast and 1 in the lymph node on the 5th December following some unusual dimpling I had not seen before. I have been informed it’s treatable which is a major positive and will be forever grateful.
I will have my Mastectomy in two weeks along with reconstruction and they are taking the lymph nodes also. My main question is for anyone who has been through the op, is there anything you can recommend to help with comfort post op, such as sleeping in a certain way, any pillows for support and were you able to lift your arm to wear anything that went over your head or is it purely buttoned/zipped tops for a few weeks? Also they have suggested Radiotherapy after, how many weeks after is it when this usually starts?
Lastly sending Much love to everyone who has been put on this difficult journey also. Sadly its not my little family’s first rodeo following my husbands diagnosis of head & Neck cancer last Christmas on the 5th December 2023(exactly a year apart) and he is doing amazing and recovered so well, so just want to say, it’s tough and cruel somedays but with our amazing nurses and family, we got this!
Hello, I’ve had two separate mastectomies (the first with an axillary clearance. You might find it more comfy and practical (especially if you have a drain fitted) to sleep on your back almost semi upright, as it can be uncomfortable if you roll onto the affected side. Sometimes people sleep for a few days in a recliner chair (which prevents rolling) but I haven’t got one, so didn’t try it. I used a V pillow for support, and popped an ordinary soft pillow under my armpit for comfort. There are some special shaped pillows for mastectomies also, but I didn’t use one.
You will be given a booklet of exercises to do following surgery. It tells you when to try them, and in what order. You’ll find that you can’t do them all at first, but it gets better. I used button up tops for the first couple of weeks , and a front buttoning bra can be useful if a single mastectomy . It was easier and less sore that way for me, but we are all different.
My radiotherapy started about nine weeks after surgery, but it can vary. This is one of the reasons why the exercises are important as you will need to get your arms in a certain position for this treatment. Your breast care nurse will likely demonstrate this if you ask.
I’m sorry that your husband is going through a challenging time. X
Hi, thankyou for your advice and recommendations, I had read something about the recliners and wondered how many others had found them useful, i May borrow my dads if it’s really going to help at night. I will look Into those v shape pillows also as I can imagine the drains get knocked if you’re not supported enough.
I hope you’re ok and on the road to being at the end of your journey with full health x
Hello,
So sorry to hear that your family are going through the big C rollercoaster. It's just bloody horrible, but you've seen what good support can do
I had a Righr side mastectomy 10 weeks ago.
Too tips -
Start moisturising your side, armpits & upper arms. Get your pits waxed for the last ever time!
Find the exercises on the breast cancer now website and start doing some of the stretches NOW so you are a little more supple going into surgery. And do them religiously afterwards. I thought it would be impossible to do the hand walks up the wall but it actually comes quite quickly (which helps with everything).
Rest - not everyone sleeps through the day, but go to bed & rest for at least an hour each day, really helps with lymph drainage.
Get a V shaped pillow - most comfy to sleep on, I stopped using it 2 weeks ago. I also still have 2 small heart shaped pillows - useful for slightly raising your arm while sleeping.. Really useful.
Clothes - cool & loose. I had a stretchy vest top & hoodie, button shirt, zipped fleece etc. It's winter so PJs are a must!!! Nothing too fluffy though as it sticks to your wound dressings. Takes about 10 days to put a jumper on yourself.
Drains aren't in for long, mine was a day - hospital gave me a bag.
Walk a bit & drink lots of fluiid.
Good luck to you - sending positive & healing vibes
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