Recently diagnosed

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Hi

I was diagnose in September and had a lumpectomy. My tumour was analysed and found to be oestrogen positive and HER2 negative. It was also grade 3.

Following further tests(oncotype) it was decided I need chemo as well as radiotherapy. This will start in January. I am trying to be strong , brave etc but to be honest it’s a lot to process. 

joined this forum just to find other people and to feel that it’s not just me struggling

  • Hi Bridgette,

    I was her2neg, erpostitve, prpositive grade 3. Diagnosed in May this year. I had my lumpectomy and sentinels nodes removed in June. Chemotherapy July to September and radiotherapy in October. I am now on daily Letrozole tablets for 5 years then Tamoxifen for 5 years. I have to have 6 monthly bone infusions for 3 years.

    As you can see I am at the other end of this recovery journey same diagnosis as you. It's tough going, scary at times but doable. I wanted to write to let you know I have travelled my journey and am now planning to go back to work in the new year.

    Please be kind to yourself, listen to your body and give yourself little treats.

    Take one step at a time. Happy to answer any questions that might be helpful to you. We all experience the anxiety and fear. It's the not knowing. Once you start your chemo you will feel in control again. Take care xx

  • Thankyou so much. Looks like I will have the same treatment as you. It’s very scary isn’t it? 

    did you wear a cold cap? 

  • Hi Bridgette,

    No I didn't wear it. I didn't want to be at hospital longer than needed. You need to have it on an hour or so before treatment and a couple of hours afterwards with no guarantees. I felt I was suffering enough.

    I has 4 cycles of EC every 3 weeks. On the 2nd cycle my hair fell out in clumps. My daughter shaved it for me at this point as it was horribly thin and balding.

    I live my wig. People don't realise your wearing one. They are very well made. No bad hair days. Xx