Er8 Pr7 her2 negative 6cm tumour

I totally get the in denial bit. I almost forget sometimes about this situation I’m in and feel almost normal for a few hours and it’s kind of nice to pretend it is not happening. I think sometimes the longer in between appointments allows me to feel this way. Then appointment day comes and it’s like my mood hits rock bottom again. It’s good to hear you was able to get a lumpectomy rather than mastectomy especially after they had pre warned you it wears going to be the latter. 

Only 2 more days to wait now till I should get some idea of my plan. I will update on hear when I get it and I hope to hear about your next steps when you find out it’s definitely good to chat to others in similar situations. 
send you a hug xx

Hi Marie31, after reading you post, I just wanted to offer you a bit of reassurance.I was diagnosed in January and didn't start my chemotherapy until March, which did concern me at the time. I was also worried about tiime frames of treatment and whether cancer could spread while waiting. I finished chemo in July and didn't have my surgery until October, which was a mastectomy with diep flap reconstruction, plus 20 lymph nodes removed. They did reassure me it was fine, as I was on phesgo injections. When I got my results there was no cancer in any lymph nodes (previously had been in 1), the two tumours were gone and there was no sign of cancer in breast tissue. Lung nodules were also found when I had my first ct scan, which they said they've seen more of since covid. I go for 3 monthly scans and due my next one on Monday, so far none have shown any changes to the nodules, so they are not concerned. I wish you well on your journey moving forward. Xx

Wow this is very informative for me and you have immediately reassured me an about the lung nodules. I have had Covid pretty bad a few times so let’s hope it’s from that. Your journey sounds very positive so far. What kind of bc do you have if you don’t mind me asking is it similar to mine? Hormone fed? You must be over the mom with your results! I’m wishing the next year away to be in your position now! Thank you for taking time to reply it really does help ease my overthinking when I read about positive results and journeys! Xx

So pleased to have been of some help to you, this is what these forums are all about, I hade grade 3 invasive ductal carcinoma, with 1 lymph node affected and cancer cells in breast tissue. I was diagnosed ER positive, PR positive and also HER2 positive. My treatment of phego is still ongoing at the moment, due to being HER2 positive. I also have to have zoledronic acid infusions every 6 months for the next 3 years, this is to lower the chance of cancer coming back. I'm now also on letrazole, which is a hormone blocker, which I'll be on for the next 5 years. I would like to say that when I was first diagnosed and waiting for results, my anxiety levels were really high. I made the decision that I couldn't go through that level of anxiety for the next year, so decIded I needed to be more positive. It did help that my hubby is a very positive person. I cut out all alcohol, made sure I was eating really healthily and we both started walking 2 1/2 miles everyday, even through chemo. Taking control really helped my mindset and I got through chemo with minimal  side effects. Please keep in touch and let me know how things go. Also feel free to ask any questions, if you have any. Xx

Hiya I’ve also cut alcohol completely and also started the keto diet from the day I was diagnosed. Like you said little things got can control do make us feel better about it all. I do enjoy walking and need to push myself to go out and do more of this! I will make that my plan for this week! I’ve got no idea of all the meds you are on but I’m sure they will all make sense over the next few weeks/months! I’ve already learnt a lot of the dialogue that I had previously no idea about it’s amazing how many different types and treatments are available to different cases! Blows my mind. It sounds like you are a good way ahead of me with treatment so it would be good for all the help and tips you can offer me xx

Thanks again for the info! Really helps me x

I can totally relate,  I have my 6th hospital appointment tomorrow being a bone scan which as far as I am aware is the final scan my surgeon wanted prior to the treatment plan being drawn up.

The reality is it has been 5 weeks since the biopsies were taken so it has been fairly quick I suppose but it feels like the longest 5 weeks of my life!

I am hoping to get my plan either this week or next.

Same diagnosis as you but several lumps and in lymph nodes too.  Provisional plan mastectomy,  lymph node removal,  chemotherapy and radiotherapy for around 1 year.  No dates, number of cycles or order of treatment confirmed but surgeon has indicated that mastectomy will take place in next 3 weeks unless scan results confirm any secondary issues.  From reading information from all the lovely folks on here I guess that may make it chemo first.

Share your fears, they are normal and I find it helps to put them in writing (so forgive me for waffling on - no one has to read it all).

Crack the dark jokes if it helps, request the expensive designer beanie hat for Christmas (might be cold with thin or no hair), it's waiting to be wrapped and take pleasure from what you can.

Be kind to yourself,  there is no rule book for dealing with this.  Wishing you all the best. 

Morning x I hope this final scan is the last piece in the horrible puzzle for you! I am hoping I get some phone calls with some dates for appointments today. Trying to be patient but hard. Did they indicate how quickly you would get your bone scan results? X

Sadly not. Family have suggested that after the scan I visit the breast care department to book my next appointment.  Not sure whether to do so or not as I rang my BCN and left a message on Friday so it should be in hand.

Wanting treatment to start but terrified for when it does.  But I am sure the reality will not be as bad as I imagine. 

Hi Marie 31,

I was diagnosed her2neg, erpostitve,prpositive  grade 3 in May this year.

I had a lumpectomy and sentinels removed in June. There was no spread to my lymph nodes but due to grade 3 (fast growing) Ithere was no guarantee that a rouge cell had not travelled in blood stream so i was offered and accepted 4 cycles of EC 3 weekly. With the injections on week if chemo. I then had my radiotherapy in October and commenced Letrozole for the next 5 years. I have bone infusions 6 monthly for a 3 year period. My first one last week which was fine.

My treatment plan is now daily Letrozole for 5 years. Bone infusion 6 monthly and yearly check ups.

I wish wish you well with your treatment plan and  recovery. Happy to answer any questions you think my be helpful to you. Xx

Hope the bone scan goes ok for you and they give you the results quickly it’s this part that drives me crazy the waiting in between scans and results. I will update you when I get my call tomoz and let you know what they say to me. We do sound pretty similar! Sending you a hug today xx