New to group

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Hi everyone new to group have been plucking up the courage to join 

feeling rather lonely stupid confused about side effects if I listed them all I would have a book as big as the bible I don’t know what to do now I feel stupid cos the adverts so people after cancer healthy and well an i a imaging pain tiredness feeling down do I need I kick up the bum my can er was only small 

  • Hi Ingus64

    Welcome to the forum and I am sorry to hear that you have been diagnosed with breast cancer.  The list of possible side effects is long but it's very rare for people to get all of them.  Everyone reacts to treatment differently. Some get side effects and some get none at all.

    There is plenty of help out there for people going through treatment and this forum is a great place to get support whenever you are feeling down.

    Wishing you the best of luck with your treatment.

    Best wishes

    Daisy53

    Community Champion Badge

  • Hi Ingus64,

    Im sorry to hear your going through all this, but am so glad you plucked up the courage to reach out to us. Daisy53 is absolutely right, you don’t get all the side effects just some, we are all different and our bodies are all different, so if one medication is not right you contact your G.P or breast cancer nurse and change it. If I were you, I would forget about that list and start a new day afresh.

    I had a lumpectomy some months ago and lymph nodes removed, I  finished my radiotherapy a few months ago, have been told I’m clear and now have to take one tablet a day for five years. It is a shock when you are told and it does not matter how small your cancer is, it is still a very scary time, but it is important you take a bit of time to let it register and sink in. The strides made in modern cancer medicine these days is amazing and they can do so much for you. However, there is so much you can do for yourself too.

    You have made the first big step by finding the Macmillan site, also do visit your nearest Macmillan centre, a list is on here, or ring them on 0808 808 0000, they are superbly helpful and give you lots of great info, do walks, talks, help with benefits, bills, open 10-4 Mon-Fri for coffee and chat and lots more. Please also get a good support structure in place, family, friends, good work colleagues, I’ve lived on my own for nigh on forty years, but realised you can’t do this on your own. I also go for a short walk every day (British weather permitting) and do a daily diary, this is mega helpful, as it gets everything off your chest and out of your system. It is important during the day to keep yourself occupied, hobbies, interests etc., it stops you from dwelling on what is going on. You may also find it beneficial to listen to a meditation podcast, they really help you to relax especially when you are trying to get to sleep. I use one called ‘Go Gently’ by Christine Elizabeth Smith, it does a lot for me. Whatever you do, do not visit Dr Google as there is so much conflicting information, your head will spin and it will stress you out, listen to your medical team and ask your breast cancer nurse as many questions as you want. Also, you get great support on here.

    I know it’s hard sometimes, but try and keep as positive as you possibly can, have positive people around you and dump the negativity, above all, be kind to yourself - I promise you, you will get through this. You are not stupid and you are certainly never alone, and can always come and chat to us shower in here at anytime.

    Keeping fingers and everything crossed for you.

    Take care and big hugs.xxx