Hi everyone
Here to share my experiences and worries from the last two weeks.
Fit and healthy 38 y/o saw my GP about a breast lump back in February 2024. After ultrasound I was informed it was a breast cyst and had it aspirated. Fast forward 6 months and the lump had not gone away and had gotten big and uncomfortable. in the last two weeks ultrasound, mammogram, MRI have confirmed i have grade 2 ER positive breast cancer and spread to lymph nodes all one side. CT scan shows three anomalies on lung on spine, so have been referred for a PET. Consultant indicated it is 50/50 as to whether it has spread. Someone else told me the likelihood of having three benign anomalies on a CT are pretty low.
Alongside all this i have had a 2m lump near my rectum for more than a year. I saw a consultant about this back in April (after misdiagnosis as piles by my GP), who referred me for MRI scan. it was inconclusive as to what it was, but the consultant did not seem overly concerned, and put me on a surgery list. I delayed the surgery over the summer to accommodate personal and work travel commitments. Now kicking myself for not tying all this together sooner (or pushing the doctors to do so).
Feeling very scared, angry, anxious and quite hopeless as I await the PET today, and then the agonising further wait for those results.
Lucky to have supportive partner, family and colleagues around me, but struggling each day with bouts of crying, upset stomach from anxiety, restlessness. Just pressed GP to prescribe short course of sleeping tablets and anti-anxiety to try and make the next few weeks a bit less excruciating. I'm finding that when I can get my head into focussing on something like driving, the process of cooking a meal, answering emails, and writing this, I can set aside dark thoughts for a little while. Spent several hours at the hosptial yesterday, supported by my mum, getting ultrasound, biopsy and mammo of other breast. Even that felt like a nice distraction as at least it felt like progress.
PET is scaring me because of the length of the process, an hour inside my own head inside a machine. and the likelihood of not good results.
Ooop just had call from nurse. HER-2 results negative. I think I am supposed to be a bit comforted by that.
Thanks for listening. looking forward to connecting with this community as i move through this journey, and already looking forward to being in a place where I can provide support to other folk in these early, terrifying stages of diagnosis.
xxx
Hi LottieWat,
I am so sorry to learn of your circumstances and what you are going through. I had a lumpectomy some months ago and lymph nodes removed, I finished my radiotherapy a few weeks ago and am now taking one day at a time.
I know this is a scary time for you, but it’s good that the first bit of news is positive and a bit of a relief to you, I know mine is somewhat different to yours, however, if this turns out to be the worse case scenario it is important you take a bit of time to let it register and sink in. The strides made in modern cancer medicine these days is amazing and they can do so much for you. However, there is so much you can do for yourself too.
You have made the first big step by finding the Macmillan site, also do visit your nearest Macmillan centre, a list is on here, or ring them on 0808 808 0000, they are superbly helpful and give you lots of great info, do walks, talks, help with benefits, bills, open 10-4 Mon-Fri for coffee and chat and lots more. I also go for a short walk every day (British weather permitting) and do a daily diary, this is mega helpful, as it gets everything off your chest and out of your system. It is important during the day to keep yourself occupied, hobbies, interests etc., it stops you from dwelling on what is going on. You may also find it beneficial to listen to a meditation podcast, they really help you to relax especially when you are trying to get to sleep. I use one called ‘Go Gently’ by Christine Elizabeth Smith, it does a lot for me. Whatever you do, do not visit Dr Google as there is so much conflicting information, your head will spin and it will stress you out, listen to your medical team and you get great support on here.
I know it’s hard sometimes, but try and keep as positive as you possibly can, have positive people around you and dump the negativity, above all, be kind to yourself - I promise you, you will get through this. You are never alone and can always come and chat to us shower in here.
Keeping fingers and everything crossed for you.
Take care and big hugs.xxx
Hi LottieWat , sorry you have had to join this club which no one would choose…. You’ve got a huge amount going on at the moment and so much uncertainty, no wonder you’re feeling anxious and upset, not to mention angry! Glad you’ve come here, it’s a great place for support and shared experiences. My story is different as I had many false alarms over the years but when I finally got cancer it was apparently unmistakable as I was told on my first visit to the breast clinic on that occasion. Sorry your diagnosis has been so long and drawn out which only makes it worse in terms of living in limbo.
Keep posting here, many of us have found that just writing it all down can be therapeutic. And there will be others here with more similar stories and experiences. If you click on people’s usernames you can read their profile (if they’ve chosen to fill it in, it’s not compulsory but I think it’s useful).
Sending love and a big virtual hug your way, HFxx
And just to add, don’t Google!! So much there is out of date or just wrong. Stick to reliable sources of information and support.
If you’re anywhere near London, I’ve found Future Dreams in Kings Cross a lovely place to go for in house sessions but they also do online stuff. It’s for anyone affected by breast cancer so includes friends and family. Xxx
Thank you Boobybabe2 even just getting all this down on here has helped release some frustration. Appreciate your thoughts and you are right about google, I do need to try and exercise more self restraint there.
I'm so glad to hear you have already made good progress through your treatment plan. Hoping your life starts to settle into a more 'normal' routine in the coming weeks and months.
Thank you HappyFeet1 , i'm giving myself a gold star for coming on here and registering a profile this morning. My partner went to work and I was staring down the barrel of a day trying to get on with my work whilst waiting for the Pet late this afternoon and was just spiralling. Sharing feels good.
It sounds from the very clear way you've articulated your advice that you have done a lot of work to process your own thoughts and feelings, and its reassuring to know that I might be able to come out of this with similar sage advice and support for others. Thank you x
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