Im new here hello

  • 9 replies
  • 486 subscribers
  • 280 views

Hi I'm new here was diagnosed in July and it feels like a roller-coaster ride. 

  • Hi Sameh

    Welcome to the forum and I am sorry to hear that you were diagnosed with breast cancer.  When you feel up to it why not give us a bit more information about yourself and your diagnosis as it helps us to give you whatever support you need.

    Wishing you the best of luck with everything.

    Best wishes

    Daisy53

    Community Champion Badge

  • Hi I’m also new here and diagnosed in June so poss on a similar path? Would be good to connect 

  • Hi Chitty

    I hope that you are managing OK emotionally as I found it tough. All the decisions about treatment too are not easy. Also the reactions of family and friends is not easy to deal with has been my experience. 

    Have you had any treatment ie surgery or chemo at this piont?

    I'm currently recovering from having a mastectomy and lymph removed and temporary reconstruction.

    My next decision is which treatment to take as was given different options. 

  • Hi Daisy 

    • Thank you for your message it's good to connect. 
    • I have lobula stage 2 grade 2 cancer. 
    • I had mastectomy and lymph removed and implant put in for now.
    • I am now deciding on the treatments recommended..
    • Chemo, radiotherapy, biology therapy and hormone therapy and biosaprol. It seems otfo take on board all the side effects and long term effects
    • I had the appointment yesterday so lots to process. 
    • So that where I am at now. 
    • Best wishes to you too wherever you are at in your health journey. 
  • Hi Sameh

    I started chemo in August, 6 rounds, due to end in November then surgery in January, so the opposite way round it seems?

    Im halfway through now but am struggling emotionally, cry all the time! I’m normally the strong one, the doer, so finding this tough!

    Telling my family was so tough, I didn’t tell them until I knew the treatment plan, but they have been great, my husband is my rock and I have a small network of close friends all have been great but dealing with others reactions and now the world seeing my bald head has been difficult at best

    Did you have a full or single mastectomy? Were you given a choice? I’ve not heard of a temporary reconstruction, does that mean more surgery? Sorry so many questions

    sending you positive and healing vibes Pray

  • I saw your message to the community too. 

    It's hard to focus I'm sure with the treatment. 

    I do try to meditate and pray but the pain and lack of sleep made it hard.

    It's hard to always be positive too when treatment and knowledge of the condition is all very stressful an d scary and painful. 

    Sending healing thoughts to you Pray

  • Hi Sameh,

    I had a lumpectomy some months ago and lymph nodes removed, I  finished my radiotherapy a few weeks ago and am now taking one day at a time. It is a shock when you are told and it is important you take a bit of time to let it register and sink in. The strides made in modern cancer medicine these days is amazing and they can do so much for you. However, there is so much you can do for yourself too.

    You have made the first big step by finding the Macmillan site, also do visit your nearest Macmillan centre, a list is on here, or ring them on 0808 808 0000, they are superbly helpful and give you lots of great info, do walks, talks, help with benefits, bills, open 10-4 Mon-Fri for coffee and chat and lots more. Please also get a good support structure in place, family, friends, good work colleagues, I’ve lived on my own for nigh on forty years, but realised you can’t do this on your own. I also go for a short walk every day (British weather permitting) and do a daily diary, this is mega helpful, as it gets everything off your chest and out of your system. It is important during the day to keep yourself occupied, hobbies, interests etc., it stops you from dwelling on what is going on. You may also find it beneficial to listen to a meditation podcast, they really help you to relax especially when you are trying to get to sleep. I use one called ‘Go Gently’ by Christine Elizabeth Smith, it does a lot for me. Whatever you do, do not visit Dr Google as there is so much conflicting information, your head will spin and it will stress you out, listen to your medical team and ask you’re breast cancer nurse as many questions as you want also, you get great support on here.

    I know it’s hard sometimes, but try and keep as positive as you possibly can, have positive people around you and dump the negativity, above all, be kind to yourself - I promise you, you will get through this. You are never alone and can always come and chat to us shower in here.

    Keeping fingers and everything crossed for you.

    Take care and big hugs.xxx

  • I'm new here too. Diagnosed in June. I feel I have a never ending list of questions!

  • Sameh

    I hope you find strength in your prayers. I did and will add you to my prayers. Even without the faith element, taking time for quiet reflection can help in the midst of life, frequent appointments, tests and treatment 

    I send my hopes your prayers will guide you through this difficult time.