Worried

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Hi all, I am so very new to this. I was diagnosed with breast cancer on 2nd may and I still have no staging and no treatment plan. It's driving me mad all this waiting. I just want to know if this is normal. I read that treatment should start 61 days after referral. I am now 71 days. I have tried to phone my nurse but I get nowhere. I am so scared because my sisters breast cancer was delayed and delayed and hers spread to her liver and bones. I have two children, what should I do. Please can someone give me advice or information. X 

  • Hi Pinkworrier,

    Give them a call. if unable to get oncology team call your GP to make contact for you.  Not sure about all the waiting times but mine was diagnosed 20th May with biopsy results on 30th I had my op on 5th June and awaiting biopsy results on 20th. At each appointment I've been given my next one. Not sure if this is the norm or I'm just lucky.

    Chase it up they should keep uou informed. Phone the macmillan nurse on here they will keep you right.

    Good luck Thumbsup fingers crossed you get your answers xx

  • Hi Pinkworier

    Welcome to the forum and I am sorry to hear that you have been diagnosed with breast cancer. The waiting for a treatment plan can get very frustrating and worrisome.  I suggest that you keeping ringing your nurse and telling them how worried you are because of what happened to your sister. You could also ring the breast clinic you are attending and see if you can talk to your consultant to find out what the delay is.

    In the meantime why not ring the MacMillan support line on 0808 808 00 00 to talk to someone about how you are feeling and they should able to give you advice. The helpline is open from 8 am to 8 pm seven days a week.

    Hopefully you won’t have to wait too much longer for your treatment plan.

    Best wishes

    Daisy53

    Community Champion Badge

  • Hi Missmolly,

    Thank you for your reply. I have phoned them 3 out of 5 days last week. I got replies but not from my nurse and they were not helpful. I will try my GP she is lovely so hopefully she can help. Thank for suggesting that, I didn't think of that.

    How are you following your op? I hope your results come back as negative, fingers crossed Fingers crossedIts horrible waiting for news.

    The doctor said I will need a mastectomy and 1 lymph node removal. But again nothing is being sorted. It is driving me mad. I don't want to end up like my sister. She passed from breast cancer 5 years ago. Luckily she had no children. Unlike me I have 2. 

    Thank you for replying, it's just hitting me that I have cancer. 

    Sending love to you and I hope you beat your cancer xx

  • Hi Pinkworrier,

    I'm sorry to hear about your sister. I also lost my daughter to breast cancer she was just 30 when she died hence the reason for my anxiety and the need for quick treatment options.

    I feel okay following my op. Not as bad as I thought but still taking it easy. So scared I do anything wrong. Doing my exercises and keeping wound areas clean. 

    Fingers crossed you get your treatment plan soon xx

  • Hi Daisy 53

    Thank you very much for the advice. I will certainly be phoning the clinic on Monday. 

    I will also give the support number you gave me a ring. Thanks again xx

  • Hi Pinkworrier, ring the hospitals PALs line if you’re not getting anywhere with the nurse. X