Just diagnosed

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Hi all

just been diagnosed and numb and scared

  • It’s hard to take in isn’t it. I was diagnosed on 14/8 now 3 weeks post surgery and told today that I need more it still feels a bit unreal. I hope you have people around you to offer support. It’s natural to feel numb and scared. I hope everything goes as well as possible for you, sending positive thoughts 

  • Hi Dizzydoo, Also just been diagnosed and got biopsy results today. Numb is definitely the way I'm feeling too, especially as they're recommending we start with chemo. Do you know your treatment plan yet? 

  • Hello 

    snap! They said chemo first then operation and radiotherapy.

    I need an MRI and another biopsy but that was what scared me the most the word chemo.

    i know it’s silly in the scheme of things but losing my heir is really worrying me.

  • Thank you yes people are being amazing / hope you have support too.

    they saying chemo first to me then operation and radiotherapy.

    so sorry you have to have more surgery.

    love and hugs x

  • I feel really sad when people are scared. You should have an assigned nurse you can speak to? My nurse is so lovely. I can call her any time of the day.
    I was diagnosed 2 days ago. I sort of expected and so was as prepared as you can be. My biggest fear was losing my hair to be honest. Then I thought of all the really brave women that had lost theirand they looked so beautiful. Also apparently you can get a fabulous real hair wig free! So I’m have thick fabulous curls to replace my thining  dry hair. JoyAnd it does grow back.

    I know everyone is different but but it has helped me by being very open about it to family and friends. Everyone has been so supportive. I wish you much luck with your journey. You can do this. Us women are stronger and more resilient than we think. Xxxx

  • Hi, I too needed second round of surgery.  I was devastated but one of the breast care nurses told me to look at it as another step in the process.  I was thinking the worst.  Hope all goes well and your margins are clear next time. X

  • Thank you, that’s kind of you. Hope you are doing well.  I’m HER2+ ER+ and grade 3 ( upgraded from 2 following surgery)  was told at diagnosis that I needed 6 months of chemotherapy + 6 months of radiotherapy and a year of Herceptin alongside. It feels daunting but if that’s what it takes to be around to support my children and grandchildren then I know I’ve just got to get on with it. Plenty of other women have had to cope with far worse than me. The fact that  treatment will be delayed by the 2 nd lot of surgery concerned me but the surgeon felt it should be ok. Dr strikes are making it tricky to find a date too. feel that at 72 it must be easier for me  than it is for some of you with young children. 


  • So pleased to hear you have good support it makes all the difference. I don’t think it’s daft to worry about losing your hair. I told myself it’s only hair and not that important in the scheme of things but actually I think I will find it pretty emotional when the time comes. Have had a practice with scarves which worked well, at the moment I think I will go down that route rather than a wig. Who knows when the time comes. It’s about having a bit of control over what cancer does to you as well perhaps. 
    I hope the chemotherapy is manageable for you, I bet everyone is scared before they start their course of treatment. I know I will be. I am reading an excellent book called the Complete Guide to Breast Cancer by Prof Trisha Greenhalgh and Dr Liz O’Riordan both are breast cancer doctors and have or had breast cancer. Liz ORiorden also has excellent stuff on YouTube and Instagram. Very informative and straightforward. Sending you a big hug xx

  • Ah thank uou 

    losing my hair is my biggest fear too silly I know.

    yes I have a nurse I will talk to her just been a a but much this week. Found out Thursday but I too knew it was cancer like you did.

    we are strong you are right!!

    xxx

  • Ooh will look and get the book!!

    ive ordered a scarf to get used to what it will look like.

    my Friend starts chemo this week and has shaved her hair ready that made me cry.

    hugs back at ya.

    k