New to this group and to McMillan

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Hi I was diagnosed with Younger Onset Parkinson’s at the age of 42, I’m now in my 64th year, meaning I’ve lived with Parkinson’s for 22years.

On June 6 I visited my GP as I thought I had a lump.

On June 14 I was referred to The Breast Cancer Clinic to be told I had Breast Cancer

On July 4 I had, a mammogram, scan, biopsy, and another mammogram and was told I had a 36mm lump in my left breast, along with swollen lymph nodes.

On July 27 I had surgery - complete Mastectomy of the left breast and 47 lymph nodes removed of which 38 were infected. Unfortunately something went wrong and I was rushed back into theatre as a small artery in my back has been nicked and I was bleeding internally.

I have a meeting with my oncologist on Wednesday, next week to discuss Chemotherapy. My Parkinson’s nurse has informed me that the Chemotherapy will negate my Parkinson’s meds. 

I was wondering if anyone had any experienced of having Parkinson’s and Chemotherapy and whether you would be willing to share any advice with me. I live with my dog, Harry, it’s just the two of us.

thank you in advance Kartie1

  • Hi Katie1

    Welcome to the forum and sorry to hear that you have been living with Parkinson's for 22 years and that you have been diagnosed with breast cancer .

    While I don't have the experience you are looking for I thought I'd reply to you anyway to welcome to the community. We have a section on the website called Ask an expert.  I suggest you put your question on there.  You will need to wait a few days for a reply.  I am sending you the link to the Ask a Nurse section: (+) Ask a Nurse - Macmillan Online Community.

    Wishing you the best of luck with your treatment.

    Best wishes

    Daisy53

    Community Champion Badge

  • Thank you Daisy53 that’s so very kind of you. 

  • Hi Kartie,

    It's so understandable that you feel anxious about how your chemotherapy will affect your Parkinson's! I don't have Parkinson's disease, but I have some kind of arrhythmia and I was terrified about how my chemotherapy will affect my condition so I really know how you are feeling - it is scary! I spoke with my oncologist about my concerns and I have to say I felt reassured because I can see that they know what they are doing and are well prepared to treat people who have other underlying conditions. The best thing you could do is to speak with your oncologist about what worries you and don't be afraid to ask questions about anything! My team is great and I hope you too will be in very capable hands. I had my first chemo last Thursday and the nurses were really great! Be kind to yourself and you are so lucky to have a dog! I am 58 and my children are grown-up, but if I pull through this ordeal I will definitely have a dog! Dogs are such a blessing! Sending you lots of love! XX 

  • Thank you Lana65, your comments are very reassuring. Living on my own makes me want to focus and forward plan for every eventuality and this I’m afraid is currently out of my control. 
    yes you must get a woofer, my Harry was a rehome as have most of my dogs have been, because every dog needs a 2nd chance at happiness xx

  • Aw I'm so sorry 4 ur pain wit all that ur already goin thru I've nt been n that situation n me heart n love is wit u on ur journey god bless u xx