Hello, I’m new here.

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Hello. New to the forum and newly diagnosed on the 4th July.  Will not forget that day.  I had a routine mammogram and was called back.  I am 62 and have had a few mammograms over the years, and usually get called back.  But all ok.  So it was a shock when they said they had some concern on my mammogram.  I had a 3d mammogram, ultrasound and biopsy.  Two weeks later told I had Invasive ductal carcinoma, grade 2, E+.  Not sure about HER2 yet.  My treatment will be surgery to remove the lump, which is small, 7mm and sentinel node biopsy.  Then if all ok with the lymph nodes, radiotherapy and hormone pills.  I feel I am lucky really as there are many who have to have chemo and mastectomies.  Trying to be positive and upbeat about it all.  The only thing I am finding hard to believe, is the fact that it is my sister, my brother and myself, all diagnosed with the ‘big’C at the same time.  But we are a strong family and will fight it.  

Hugs to all the brave ladies fighting and surviving this!

  • Hi so sorry to hear about your diagnosis. Fingers crossed for your results after lumpectomy. I had lumpectomy last November. Fingers crossed you only have radiotherapy and tablets however I was told same yet ended up having chemo as an adjuvant therapy to reduce risk of recurrence. If you are offered oncotype test I would go for it as it can help inform you regarding further treatment.

  • Thank you F1 Petrolhead.  I am hoping I will not need chemo, but it is what it is if I have too.  I have not been told anything about oncotype tests?  

  • It's an additional pathology test they can do on your lump when it's removed. It looks at the tumour and gives a score out of 100 for the chance of recurrence. I think it's only done if no lymph nodes are involved. If you get a score below 15 it's radiotherapy only between 15 and 30 it's a discussion as to the benefits of chemotherapy and over 30 chemo is recommended. NICE guidelines support it so should be able to be done on NHS but I know some dont. I had a score of 29 so chemo was a no brainer for me. 

  • Thank you again for the information.  I will ask my BCN about the test.  They did say they didn’t think it had spread to lymph nodes, but you do not know until they test them do you?  My sister had radiotherapy a few months ago, but now is having chemo just in case of reoccurrence.  I can’t moan, she has been through so much lately. 

  • Hi Ladies.  I am home from having my lumpectomy and sentinel node biopsy op today.  My surgeon said it all went well.  Better than I expected.  It’s worse in your head, than it actually is.  I was lucky to be first down to theatre, which was good, less time to think about it all.  Have to say everyone was lovely and really took care of us all. There were 3 ladies on my ward, one having exactly the same op and another lady an eye op.  Overall, was more worried about being put out, than the op to be honest.  But I was fine, and woke up in the recovery room, which is the first time I have, after an op.  I was relieved.  Silly I know, but it is strange the things you worry more about.  Had to have oxygen for a few hours after, but all was ok in the end.  I am asthmatic, so put it down to that.  We all went home about tea time which was good.  Feel a bit sore and tired, but am able to move my arm ok, better than I thought I would.  Might be a bit different tomorrow, but will do the exercises recommended.  Results of biopsy should be in 2-3 weeks time.  So fingers crossed for that.  

  • Glad it all went ok. Take it easy make sure you do your exercises. Fingers crossed for results xx

  • Hi, glad all went well for your operation and best wishes for your results.  I had the same operation as you however my margins were not clear and I had to have a further 1cm removed.  My results then came back clear.  Just telling you this incase you need a second surgery as I was so devastated but apparently it’s just a second step for some people.  Also under your arm will be sore about day ten so if you have one of the u shaped cushions that you use on a plane for your head put it under your arm.  Best wishes for your results.  

  • Thank you for the information and your wishes, appreciate that.  I have one of those pillows, so will use if it I need too.  I am hoping I do not need another op, but if it comes to that, than so be it.  Just taking it bit by bit, that’s all you can do I suppose.  

  • Exactly it's the best way forward step by step. Have a pad of paper handy so Amy questions you think of for next appointment you can write down. And there are always people around on here even the awake thread for those who struggle sleeping