Hi everyone, I’m new to all of this

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So it’s taken me a while to wrap my head around all of this as it’s been quite the ride for me. Got diagnosed with invasive lobular breast cancer in sept 2022, biopsies got dragged out abit trying to get confirmation on both sides, turned out to be just one side. Lumpectomy oct 2022 , lymph nodes also checked but clear, thank goodness. Told it was grade 3 but not confirmed what stage it was. Tumour was bigger than anticipated but surgeon thought it was all captured within margins . Initially told post surgery radiation alone might do the trick, but then told chemo would be best as I was in a grey area based on the test done on the tumour. Reached out for help to my nurse support team, but didn’t feel like anything I asked was answered. 

I’ve muddled through on my own, Thought I was doing ok telling myself one day at a time, but treatment has put me through hell - Gone through 3 chemo sessions so far, tried the cold cap but still lost my hair , feel so crap, everything tastes foul, feeling nauseous , not sleeping at night, so tired and exhausted all the time. Think I have 3 more chemo sessions and then radiation as the plan. 

just feeling like this is all a nightmare that’s never ending. Had 7 months of thinking I just need to get through this next bit but there always seems to be something else to endure. This post surgical treatment has felt so counterintuitive to me. I’ve never felt so sick. feeling pretty traumatised and vulnerable without my hair. Eating and food used to be a pleasure but now it’s a punishment. I feel so grumpy and irritable which is just not me. I’m questioning everything. 

  • Hi Su31e

    I am so sorry, it sounds like you have been having a really rough time with it all and for such a long time. I think you are right though by thinking you have gone through the worse so surely once you have finished the rest of your chemo it can only get better. Do you wear scarves on you head or have you considered a wig? I can not imagine how it makes you feel. Do you have a supportive family, children? Sending you lots of love and strength xxxx

  • Hi Su31e

    Welcome to the forum and sorry to hear that you have been diagnosed with breast cancer and that you are struggling.  Are you taking your anti-sickness tablets? If you haven't already could I suggest that your ring your oncologist and tell them about how you are feeling.  They should be able to adjust your treatment so that you don't feel so sick all the time.  If you feel up to it why not ring the Macmillan helpline and ask them to arrange some counselling for you.  Here's the link to all the supports that you can receive from Macmillan: Emotional, financial and physical help for people with cancer | Macmillan Cancer Support.

    Wishing you the best of luck with your remaining treatment and sending you a hug.

    Best wishes

    Daisy53

    Community Champion Badge

  • Hi Su31e,

    I'm new here. It's my first post.

    I feel for you. It seems to be a lonely, long road.

  • Gosh sounds like you are having a really tough time. Do you have a Maggie’s Centre attached to your treatment centre? If so it’s a fantastic place for support. I have made good use of the one in Leeds (didn't think I would), but I dont think they are everywhere in the country. Definitely worth a look!

    Can you set yourself at least 1 indulgent treat a week? It’s all about being kind to yourself isn’t it? I know it’s not easy. I’m due my third EC chemo on thursday but white blood cell count dangerously low so might not be able to have it - as you say, always another hurdle but you will get through this. 

    I’m sure they can sort the sickness out for you. I have a fantastic wig on standby so definitely consider that too.

    Ive had days of grumpy and irritable too - getting outside always helps, even when I don't feel like it.

    You have got this and we are here x