Triple negative stage 2 BC

Hi

My ongologist refused any scans as said it was not in the lympe nodes and that is where it spreads from but I threw my toys out the pram and he agreed on a CT scan, luckerly it was clear, I did asked him about it spreading through the blood and he said it was unusual but can happen.

How are you doing now?

Kerri

I had the secondary burnt out through microwave ablation just before Christmas. Got an MRI next week to see if my liver is now clear, and had a CT scan last week. 

Hi Louise,

I too have TNBC and and live in Leeds - so treatment is at Jimmy’s. Presumably by now you have the results of your MRI and a treatment plan. I thought TNBC always meant chemo? Maybe I’m wrong?

I am having chemo first - 3 rounds of EC once every three weeks, and then paclitaxel weekly - then surgery - the type of surgery will depend on the genetics outcome. Overall I have tolerated the chemo pretty well so far for which I am grateful

I too didn't want to tell people for a while - I just didn't want to keep saying it our loud and see people’s reactions, but I can cope better with that now.

I was diagnosed 2 days before christmas - the treatment does make me starving all the time - but no weight gain. I eat all the right food and walk the dog every day.

The Maggies centre attached to Jimmy’s is brilliant for support and respite - just to even sit there whilst waiting for blood results etc so definitely make use of that if you are coming to Leeds for treatment.

Hope you still feeling grounded - just wanted to reach out as a Leeds person!

Jan

Thanks Jan! I’ll definitely need chemo and am waiting for a CT scan and oncology appointment, which comes after the scan apparently. I’ll be chasing everything up until I get answers or appointments.