Fear of cancer returning

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Hello

i spent most of last year being treated for breast cancer grade 3 oestrogen receptive with one sentinel node affected . I had a lumpectomy, chemotherapy and five weeks of daily radiotherapy and am now on Letrozole. I feel overwhelmingly scared about the cancer returning and wondered how people deal with that? My treatment was in France and there is no aftercare given there. I have been referred to The Churchill in Oxford and am waiting for an appointment where hopefully I can get some help. I feel more frightened now that the treatment has stopped 

  • Hi Clarice,  I read your message & thought “that’s me” I had a very similar diagnosis and finished active treatment about a month ago.  It’s really hard not to think every ache & pain is the cancer coming back or spreading!  Even this morning when I was dropping my daughter to school I felt a twinge in my back & my immediate thought was “it’s gone into my spine now!!” It is exhausting & I know I need to learn coping mechanisms for dealing with this as I cannot live the rest of my life under this cloud! 

    I am signed up to attend a Moving Forward course which I’m hoping will help me deal with this ever present fear.  Take a look at this link for more information & hopefully you’ll find it useful: 

    https://breastcancernow.org/information-support/support-you/moving-forward-online-course

    Best of luck xxx

  • Good morning, 

    I was treated last year for TNBC and have not yet had my last follow up but I was given information about a moving on course run by Breastcancernow.org. I’ve not done it yet but this may be worth looking into is you’ve not heard about it. They offer a zoom link. 

    I feel in such a surreal period just now after the roller coast of last year, I feel people think it’s over, you smashed it but it’s far from over and I certainly don’t feel brave, more cat in the headlights, dazed! 

    xxx

  • I attended one of the first moving forward courses held face to face after Covid last year . I found it really helpful and the book that comes with it is a great guide .

    Hope you find the same 

    Penelope x

  • I think because every day during treatment is just full of either tests, treatment itself or waiting for the next one to begin it just swallows you up. So when suddenly your oncologist says they will see you in a year, it feels weird - good though.

     I think it’s going to be a permanent thought that every twinge will cause concern we need to learn, easier said, to relax a bit. 
    xx

  • Thanks so much for your reply. I have booked onto one of their courses in April. I agree it’s not over when the treatment stops. It’s like, ‘So what happens now?’ ‘Am I ok?’ ‘How do I get back to normal?’

  • That’s the part I want to learn - how to relax back into some sort of normality. I am going to get some counselling to help wit this. Thanks for replying

  • Thanks Penelope I have booked onto one of their courses and am going to get some counselling