DCIS

Hi LinnyAnne

Welcome to the forum and sorry to hear that you were diagnosed with breast cancer and that you need another surgery. It’s perfectly understandable that you are feeling overwhelmed and a little traumatised you have been through a major trauma.  Don’t be too hard on yourself and just take things a day at a time.

Wishing you the best of luck with your surgery.Hopefully it will work this time.

Best wishes

Daisy53

Thank you Daisy53 , it's like being on an emotional rollercoaster these days.

As you say, one day at at time x

Hi Linnyanne,

I had DCIS 25mm and IDC 15mm right breast diagnosed last October. Had a lumpectomy & sentinel node biopsy in December, unfortunately surgeon did not get clear margins, had 2nd op beginning of January 2023. Results of 2nd op were good , margins were cleared. No spread to lymph nodes either.

I am now on Letrozole for 5 years and start Radiotherapy in a couple of weeks. I count my blessings as I do not need chemo and only require 5 sessions of radiotherapy. 

It’s hard not to feel the way you do, I was exactly the same and dreading the thought of a mastectomy. But it all worked out well and hopefully it will for you too.

We cannot stop the way our minds work, no matter how many times we are told everything will be ok. Just take one day at a time, rest and do something to make you smile. Good luck on your journey xx 

Hi, 

I had a 23mm DCIS diagnosed just before Christmas and had a lumpectomy and sentinel node biopsy 3 weeks ago. I am now in the awful limbo land waiting on my results and therefore my treatment plan. I totally get the rollercoaster ride, for the most I have felt quite positive (or maybe in denial) but when I think about treatment, I spiral. They have told me that if results confirm what they can see ‘on paper’ then it’s tablets and radiotherapy if not it’s chemo and I just can’t get my head around that! 
In the mean time I’m keeping myself busy as much as I can, I do feel I may be bottling things up in order to stay positive, I can’t dwell too much as it will eat me up and just hoping and praying for decent results. 

All the very best to everyone on here whatever stage of the ‘journey’ you are at x

Hi,

I was diagnosed just before xmas as well  - surgery was the 31st Jan and I had the same surgery. Waiting is just awful and I hated it. I did get the results last week 3 weeks and 1 day after op. No spread to lymph node but I didn't get clear margins :( 45mm of tumor removed - I am seeing oncologist today and will be having chemo, followed by another operation then radiotherapy. It feels endless......

I hope you get your results soon and they are positive x 

Hi pudgina, 

Hope u get on ok today, will you find out when your chemo starts? I’m exactly 3 weeks today post op, they have told me my tumour is being sent to the USA for testing, so doubt my results will be much before the 6 weeks,  I don’t even have an appointment booked yet to go back and see the surgeon! 
did you know your treatment plan prior to your op? 
Good luck today xx

Hi Valleyside  I'm so pleased they got it the 2nd time round for you, great news.

I am hoping for the best but at the same time trying to mentally prepare myself for masectomy.

 I have no idea how to tell colleagues what's going on, dropping the C word seems harsh on them even though it's me going through it

Take care of yourself and I hope radiotherapy goes ok.

X

Thanks Bailey15. I should find out today when chemo starts. I don't think mine went for testing....... With regards to treatment plan = So consultant was quite sure chemo and radiotherapy and then tablets but said it would be fully decided after op on chemo and down to oncologist on the chemo - although he said in his professional opinion he would bet any results would say I need chemo. It looks as though the decision was made at the MDT meeting that chemo was next (by looking at summary letter) -  I did see a different consultant post op last week and she also said because of my age (41) chemo was important and the cancer was grade 3.

I think when they are unsure or just want to check they send off to America for the onco score.

Fingers crossed you don't have to wait another 3 weeks - the waiting is just the worse part in all of this.

Hugs x

Thank you so much, hope everything goes well for you too xx

They got clear margins from my second surgery, I got the news today, I'm so relieved. 5 sessions of radiotherapy and then I'm done