Hi all, I've got my first meeting with the oncologist on Wed to discuss chemo and radiotherapy. The oncotype test results are back and they are recommending chemo. Not the news I wanted as I was hoping to go straight to radiotherapy and meds but it wasn't to be. Not sure how I feel about it all at the moment. Don't know the score from the oncotype test yet so not sure how high it was. Did anyone else have the test and if so how did you decide whether or not to accept chemo. I'm hoping once I have more information I'll be able to make the right decision any advice would be appreciated. Thank you
Hi Anna Louise, sorry to hear of your diagnosis. As I was triple positive I didn’t have an option about chemo although I too didn’t want to hear I had to have it. I had hoped to go straight to radiotherapy and hormone treatment. I’m looking at it that the chemo will get rid of any cells that may be floating around in my system that had broken away from the initial tumour. The radiotherapy will then target the areas of tissue where the tumour was and the armpit where I had lymph nodes removed and also the regional nodes to make doubly sure there is nothing left. I was overwhelmed by it all but knowing that everything is being done to prevent reoccurrence I’m feeling positive. So far chemo hasn’t been too bad. Tomorrow I start 4 cycles of docetaxel and Phesgo injections which I will have up to a year. If you click on my name you can read my journey so far. Do speak with your oncologist to get all the info so it will help you make a decision. Others on here who had the onco test may also be able to help you to either there experiences.
Hi, thank you for your reply and sorry to hear your diagnosis. That's is an excellent way of looking at things, you sound as though you are being really positive which I truly believe helps. I'm trying really hard to stay positive and up until now I've coped really well but looking back I think the operations were the easier part of the journey and the hard part is yet to come. Your way of looking at things has really helped though so again thank you. I will have a look at your journey. I'm quite new to the group and not great with technology but I'm getting the hang of it slowly. Sending hugs to you too xx
Hi, hope you're doing ok. I just wanted to let you know that they have advised I do need to have chemotherapy! Also your comments really helped me to get things straight in my head and I really appreciate that.
The consultant advised that I can't have nails gel painted but I'm confused as I was led to believe that this helps protect them! Do you know anything about this? I know its only a small thing but it feels like the only thing I have any control over at the moment. Xxx
Hi Anna Louise, the reason they advise not to gel nails is because some chemo drugs might change the colour of nail or become brittle. You could also get an inflammation around the bed of the finger nails or toe nails caused by injury, irritation or infection. So as a precaution they advise not so it makes things easier. I have been with out my gel nails since I was diagnosed back in sept. I did have a small infection in a toe nail but they had resolved itself now. Hugs from cuffcake x x x x x
