Head all over the place

  • 5 replies
  • 474 subscribers
  • 740 views

I was diagnosed with secondary breast cancer in my bones in July, 14 years after my original diagnosis, which I was told was treatable but not curable. I am now taking letrozole and undergoing immunotherapy which includes having a monthly injection. The pain was quite extreme in my back and ribs before diagnosis and my mobility was so poor I had to use a wheelchair and crutches. I am now more mobile and do not need the use of a wheelchair and only use one crutch when I go outside the house.

I had a CT scan on Saturday to see how things were progressing and saw the Oncologist yesterday, as I was feeling more like my old self I was hoping it would be good news only to be told I have fractures in my hip/femur that were not there before and she sent me for an X-ray which the orthopaedic dept will analyse today to see if I need an operation to strengthen the bone. They also found something small on my liver which was not there before so have requested another MRI scan to see if it has spread. This has really knocked me back as I was feeling really positive and not experiencing any pain in my leg and I am now sat here thinking the worst which is not like me at all as I usually see positives in negatives. Sorry if this is long winded but needed to share my thoughts with other people undergoing the same.

  • I’m so sorry, that sounds so cruel that you’ve had that news when you were feeling so positive. I really hope you can have some really good times in the next few days and get back to your preferred way of thinking. I don’t know how you’re feeling but I know how hard it is to have set backs when you’ve been trying so hard to just get on and be yourself and enjoy your life whilst feeling a bit better. Im sending lots of love over Xx 

  • Thanks so much for your reply it is good to know people care and are there for you

  • Nothing worse than nasty surprises at onco appts iscthere. Sounds like you do respond well to immunotherapy if it made such a difference to your mobility. I'm no expert but I know if one type of treatment isn't working as well as it should, they will try others. Hard to stay positive I know, but I'm sure lots of us wish you well, take one day at a time and be gentle with yourself xx

  • Thanks Hev999, not a bad day today been out with ex colleague for coffee, got the cancer talk out of the way and had a real good catch up. Oncologist did not get back to me about the x-ray so fingers crossed the fracture is not as bad as first thought, either way I will deal with it.

    Thanks for the support it is appreciated