Diagnosed with invasive grade 3

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Good Morning,

So I got the news I was dreading yesterday. Grade 3 breast cancer. Still waiting on my results from the HER2 test. They have requested an urgent MRI. Then they will be able to come up with a treatment plan. Feel a bit numb today and all over the place. I had breast cancer 13 years ago, but this time it’s in the other breast and a totally different cancer. Any advice or help with waiting times and treatment etc will be very appreciated. I’ve said if it speeds things up I will pay for treatment, as don’t want it to spread if I have to wait weeks and weeks for treatment. Thankyou xxx

  • Sorry I don't have advice but wanted to hug you.   I reacted the same way but in hindsight the time I waited although terrifying helped me process stuff.  You've done this before and you can do it again.  Just remember that and stay positive.  Xx

  • Thanks so much for your reply, and kind words. I’m a very positive person and won’t let this beat me! Thanks again xx

  • Hi, I was diagnosed with invasive grade 3 also on 8th August, I had a mastectomy nearly 3 weeks ago, from first finding the lump to this stage it has all been very quick if that makes you feel more reassured.

    im just waiting on my results from surgery to see what treatment is next if any.

  • Hi There, thanks so much for taking the time to reply. That’s very reassuring for me that you have had treatment in such a short time, I really hope mine is quick too! How are you feeling? Sending big hugs for a speedy recovery xx

  • I’m feeling ok thanks, every day is a little better had my drain out last week and my expander inflated slightly, small steps to build my strength back up, a little walk here and there and plenty of rest. Still waiting for my results from surgery and SLNB.
    hope you get a surgery date very soon let me know how you get on, big hugs x

  • Hi, sorry to hear of your diagnosis. I had to wait 16 days for an MRI. Then they wanted a CT and I could not bear the thought of a similar waiting time so I figured out that this can be done easily at private hospitals.  Just might be with looking at if they give you a date that's not soon.

    I had grade 3 as well, and had chemo prior to surgery. This shrunk my lump and meant I could have a lumpectomy, which was a good outcome. Best wishes 

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  • Hi, thanks so much for your reply. The worst thing about it all is the waiting isn’t it? I think I may go down the private route. I’m hoping to find out more on Monday. I’m due to go on holiday on the 17th but think I will cancel. The consultant said to go, but I would rather try to get scans done urgently. Health comes before anything. I’m glad you’ve had a good outcome. Take care, sending big hugs x 

  • Hi, I was given formal diagnosis on the Tuesday, on the following Monday had MRI. The Friday of that week, my PICC Line was put in, and first chemo was 4 days later. MRI scans every 6 weeks. One week after last chemo cycle I had mastectomy and axillary clearance (my blood counts were good). Then a CT scan that revealed two lesions on spine - the MDT unanimously believed they were benign but a tick box exercise followed (very grateful for that), so the next week it was a spine MRI, then a full bone scan a few weeks later. The latter confirmed what they thought the lesions were  - I’ve forgotten the name of it, but very common in people over 50 apparently. About 5 weeks later, 15 radiotherapy sessions. All NHS - I am so grateful. 

  • Ps. Sorry pressed button by mistake. However, had there been a big delay I would have considered going down the private route. I agree that the waiting is very stressful. 

  • Hi, I'm sorry to hear your diagnosis.  I was diagnosed with IDC on Sept 6th. I had a CT and nuclear medicine scan the following week. I also had a holiday booked and spoke to my consultant about cancelling but he advised to go, so we did. I have to say it was the best decision. Having a week where I was wasn't thinking about my diagnosis from morning to night, second guessing the outcomes of my scans and googling was just what I needed. I got to spend precious time with my young children. It made the time waiting for results go quicker. Nothing will change in the time you are away but it might help you. I have all my results now and waiting for my masectomy then starting 6 months of chemo. Wishing you lots of luck x