Hi there, I was diagnosed about 2 months ago now, so this is all new to me. It's the first time I have ever reached out to anyone besides my close friends, one of whom is a survivor but is no better than me translating jargon.
My current diagnosis is Grade 2 invasive lobular tumor ER 8/8, PR 8/8, HER2 negative. This could all change pending results of other tests. Had a bone scan xray earlier this week. At the moment they are recommending I have a lumpectomy with radiation. I had got my head around the idea of just having a full massectomy, so this has thrown me somewhat and not so sure about this new proposal to be honest. I think I will have a clearer idea about what is best for me today when I go for my appointment and will see what they say about the bone scan results and hopefully answer some questions for me. My most recent letter with the current diagnosis was quite confusing really.
Can anyone translate the jargon above please? I have heard HER2 negative can be easier to treat somewhat and they have told me my estrogen levels are high and my cancer is Estrogen dependent. I'm 52 and pre-menopausal (tho I suspect peri, I'm still getting regular periods). I've tried to look up this info but can't seem to find it the way it is written above. Most talk about ER + and PR + (or negative) or have single numbers. So please help translate if you understand this.
Ps it's good to be here. I don't have any family at all besides my cat. It's good to have friends tho.
Hi, I’m also new having only being diagnosed a couple of weeks ago. I’m sorry I can’t help you with understanding your results but just wanted to say hi. 
Hopefully they will explain more when you go for your appointment. If it’s any help I’ve just had lumpectomy with sentinel node biopsy and they are planning radiotherapy. My tumour is also ER positive and HER2 negative. It all happened really quick and I didn’t get a choice really, although I do think they try to conserve the breast as much as they can.
It’s very confusing when you hear of women in similar circumstances having a different approach or different surgery - isn’t it?
good luck with your appointment, I hope you feel much clearer afterwards. I’m always here for a chat if you need to talk.
