• Replies 2 replies
  • Subscribers 473 subscribers
  • Views 534 views
  • Users 0 members are here

More from this forum

Community News

Triple Negative Breast Cancer

Ali A
  • 2 replies
  • 473 subscribers
  • 534 views

Hi there

I'm new to the group Slight smile

I was diagnosed in April with TNBC and have just finished my rounds of chemo and my Op is next month.

My question is has anyone been given, or going through immunotherapy treatment?

I believe it is administered like chemo and the course is a year.

I've never looked online other than official Macmillan or Cancer Research sites and today learned the side effects can be like that of chemo.

Does anyone have experience of this and are the side effects as bad? 

I must say the treatment I have received on the NHS has been outstanding and I'm feeling very positive about my Op, but the thought of a year (14 months precisely) of a further treatment with potential chemo side effects makes me a little anxious.

I'm also slightly concerned that TNBC is more likely to come back?

Very grateful if anyone can share their experience or knowledge?

AA x

  • Hi Ali!

    I begun chemo 5 weeks ago for TNBC but started Keytruda just a week ago along with the forth infusion. I have Paclitaxel & Carbo every week for 12 weeks plus Keytruda every 4th sessions. By the end of chemo I will have had 8 Keytruda plus another 9 Keytruda infusions(every month) after surgery.

    I had a biopsy marker that indicated Keytruda may help: PD-1

    If you need more information, google KEYNOTE 522

    My regimen is doable with Keytruda adding back pain and a slight nausea. Manageable though... So I`m taking Nurofen and drink lots of ginger juice. I know there are other more serious side effects but I chose not to read about them...

    I am concerned about possible recurrence too  but I read many positive stories, also found out online that diets and supplements may fight recurrence after chemo ...and surely could add a sense of control. (I can send you few links but I am not sure is it allowed)

    We will be ok XX

    Shu

  • Ali,

    check ``A More Magical Life LLC`` on youtube. It`s a lovely lady that documented her side effects( Keytruda too). She is so positive :)

    ...Helped me alot

    XX

    Shu

Help us do whatever it takes, because we’ve never been needed more.

© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007