Oncology appointment

  • 6 replies
  • 470 subscribers
  • 567 views

I have my oncology appointment Thursday to discuss chemo I think as have it in my lymph nodes, any advice on questions??

  • When will you start?

    What chemo and how often?

    Can I have a PICC line or port?

    What are the side effects?

    How are the side effects managed?

    Can I cold cap?

    Do you have an exercise programme I can access during chemo?

    Who do I call if I have concerns about symptoms from chemo?

    If your chemo is after surgery then this next bit is not relevant...

    When will I be monitored to see if its working or not? How many cycles of chemo or weeks?

    How often will I be scanned?

    How soon will I get results to make a plan after the scans to assess progress?

    Will I have surgery at the end or midway through my chemo?

    Will I also need radiotherapy?

    I am not sure if I can think of other questions but I am sure that others will have advice too.

    Good luck with your treatment. xx

  • Hi  . I'd suggest taking someone with you to the appointment as it's hard to remember everything. I'd also take a notebook and write it all down. And ask for clarity if you don't understand. I found it was a lot to take in. Best wishes 

    Community Champion badge

  • You are right about the notebook - I wrote down my questions and the answers. I also had pages at the back where I wrote down top tips on how to deal with different chemo symptoms/ cancer issues. It was so handy to refer back to as and when.

  • Thank you, alll of this is so overwhelming and makes it seem so real 

  • Hi, for me it was totally overwhelming at first, and from reading about others, I think that's normal.  It did get a lot easier once the uncertainty was gone.

    If you want to have a read of my blog, you can see how I managed. Blog link

    good luck 

    Community Champion badge

  • Thanks, you have been through so much, I will get all the information hopefully tomorrow and will be back on here for more guidance I think.  It mind blowing, sometimes I just wonder how did I get here.