Things people say…

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Hi everyone 

This is my first time in a cancer forum of any kind. It seems like a friendly and supportive place.

There have been lots of ‘firsts’ for me recently. Until my breast cancer diagnosis at the beginning of June, I had never had surgery or spent time in hospital. Now I’ve had surgery and am healing well. The next step is chemotherapy, which will start as soon as I receive the date. It’s all very new and strange.

Somewhat stranger to me, is hearing the odd things that people say. The majority of my friends, family and colleagues have been incredibly supportive and have helped me feel so loved and cared for. A few have said unhelpful things – always with the best intentions and in the spirit of caring for me – and I would like to share some of them here, as I’m pretty sure most of us have heard at least one of these statements or had one of these questions…

It’s helpful for me to post these. I hope it’s helpful for some others to read. Please feel free to add your own, as I’m curious to know your experiences too!

 Thank you for reading Blush 

THINGS PEOPLE HAVE SAID TO ME SINCE LEARNING I HAVE BREAST CANCER:

‘Get well soon!’

‘At least it's not cervical cancer' (right after initial diagnosis, before I even knew what stage my breast cancer was...)

'Sugar feeds cancer, you know.'

'X had much worse cancer than you, she was done for. Now she's got the breasts she's always wanted and has never looked more beautiful.'

'You have to have chemo? Oh (starts crying), you'll lose your hair (cries more).'

'If you want to talk to X, I'm sure she would be happy to talk with you about her cancer (then goes on to tell me ALL about X's cancer experience without drawing breath to ask me how I might be feeling or even giving me a chance to say 'Thank you, that's very kind, but no.') *X had a different cancer, which was clearly considered so much worse than mine...

'Do you have any ideas about why you have developed cancer in your breast?'

'Have you been stressed?' (ie: stress gives you breast cancer)

'If they give you a lower dose of chemotherapy, would that maybe save your hair?'

'So when does your hair start falling out? Straight away?'

'When will you be able to relax about Covid?'

'I so understand, after what we went through with X.' (from someone who has never had cancer and really, really, really doesn't understand at all)

'I had surgery too (shows tiny scar on finger - in all seriousness - when visiting me 3 days after I had had a wide local excision + auxiliary clearance and my underarm drain was still connected).'

'I've done some research online and it's amazing what they can do now. Cancer isn't as bad as it used to be.' (from another person who has never had cancer)

'You have to...' 

'You know that...'

'Have you tried...'

AND MY FAVOURITE:

Nothing. No answer. Ghosting after gently sharing this very personal news with someone who has been my friend since we were 3 years old.

I think I might be a little angry. I guess that’s normal?

  • Bless you! I hope that helped. It is infuriating. I think you’ll find some solace in this thread I inadvertently started about exactly the same thing and others shared their stories too, I’m sure you’ll get lots of responses from everyone feeling exactly the same. We know it’s well meaning but so Rage, let it out here!!

    community.macmillan.org.uk/.../starting-to-avoid-people-because-of-the-silly-things-they-say

    And yes, some people really do let themselves and then us down, hopefully other, better friends will be there for you. I have learned that oldest friend doesn’t necessarily mean best friend throughout this too. All the best x

  • Thank you for your reassurance, link and understanding. It really did help! x

  • SwimSwim

    Sorry about your diagnosis, you've come to the right place here, lots of helpful info and everyone is very friendly.  My goodness though, you've really had the full gamut of remarks, however did you stay calm?

    I had a friend of 20 years say to me "What is it you're having done again, I've forgotten".

    I just couldn't muster up any empathy when some months later, she went into great detail about an appointment for a bunion she had and was told that surgery would not happen in the near future as the NHS had to prioritise their waiting lists.

    Best wishes x

  • Hi , lovely messages already, just wanted to add another welcome and another ‘yes it’s infuriating’ to hear some of the ridiculous things people say. But as you’ve said, most people mean well, they just haven’t got a clue. That’s the glory of this forum (and I’m sure other similar ones), it’s a great place for shared experiences and a safe place to rant and rave when necessary! Love and hugs, HFxx 

    HappyFeet1 xx
    Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
  • I had get well soon card from my auntThinking

    ,I'm not close to her, my mum said she means well.

  • Oh sorry to hear that and I'm sure you will be fine and you know where I am are 3 phrases that really annoyed me.

    Then again a friend of mine of 35 years on learning my diagnosis said all the above and then failed to contact me for 6 weeks.

    I don't know whats worse. Silence or throwaway comments. Even if you dont know what to say just saying hi can be enough.

  • @Eline that is mind blowing! Yeah they really listen to what you’re saying Rofl I know it’s ungenerous but I hope that bunion really, really hurts Roflx

  • Hi

    Like you I have had some very unhelpful responses.  I have decided to take control and just say thankyou and move on.  Some I won't let them come and see me. My husband is great and helps with this avoidance action. As always it says more about them but I haven't the energy to spend on them. I am clear that I am not the victim in this process.

    After my treatments I will decide the next chapter of my life.

    ricki
  • Thank you, you made me smile to myself! I keep telling myself I'm being over sensitive but after reading your post I don't think I am Sweat smile. I feel people are talking to my boobs (Mastectomy 5 weeks ago) and if one more person asks me if I'm pleased with the surgery............    

  • Thank you for sharing this. I can totally empathise with you. A couple of my particular favourite comments included:

    "Oh that's a shame. Did I tell you that our beautiful tree fell down in our garden?"

    "Oh my friend had cancer 25 years ago and she's fine now." (totally different diagnosis)

    You couldn't make it up ;-)

    Take care xx