Firstly, I just want to say thank you for being here, because this is something so mind blowingly consuming!
I was diagnosed with breast cancer at the beginning of March this year. Arrangements were made for removal of the tumour, and I went for pre op assessment. As a result of an ECG, it was discovered I had arrythmia...second shock to my system, I had no idea or symptoms. Surgery was postponed until the cardio dept had got the arrythmia under control with medication.
I had the surgery just under 3 weeks ago, tumour was removed and some surgery to lymph nodes. At present I'm not aware just how much of the lymph nodes were removed. Wounds are healing really nicely. I have been warned I will need to undergo radiotherapy once there has been sufficient healing. I have a follow up appointment with the surgeon on June 9th.
My question is: how does radiotherapy affect you? Will I be able to continue to lead a normal life? Will I be tired? Can I still drive whilst having treatment?
I am one of those people who can certainly face whatever challenge is put in front of me, as long as I have the facts and am prepared. Just at the moment I feel as if I'm in deep water and paddling like mad to keep afloat, but determined not to let my head go under, if that makes any sense?
Thanks in advance for any advice anyone can give me?
Hi Dicha
Welcome to the forum and sorry to hear that you were diagnosed with breast cancer.
Radiotherapy is easier than chemo but there are some side effects which you can get from radiotherapy which will be explained to you when you have your initial appointment to discuss your radiotherapy. You should be able to continue to lead a normal life but you might find depending on how many sessions of radiotherapy you will be having that you get more tired as the radiotherapy goes on. You will have radiotherapy every day except at the weekends. You might also find that your skin gets redder, however whoever will be doing your radiotherapy can recommend a body cream to use to prevent your skin getting too dry.
There's a radiotherapy thread on this forum that you can look at to get advice about radiotherapy. The link is as follows: https://community.macmillan.org.uk/cancer_types/chat-breast-cancer/f/questions-about-diagnosis-and-treatment/236958/april-may-2022-breast-cancer-radiotherapy
There is also a radiotherapy forum you can look at. The link to that is as follows: Radiotherapy - Discussion Forum
Wishing you the best with your followup appointment and with your radiotherapy.
Best wishes
Daisy53
Hi Dicha and a very warm welcome to the forum. Sorry you find yourself here but it’s a great place for support and shared experiences. Your situation sounds similar to mine - I had lumpectomy, sentinel node sampling and radiotherapy, with hormone treatment thrown in too as my cancer was hormone receptive.
Re radiotherapy, it’s difficult to generalise as we’re all affected (or not) individually. In my case, I didn’t work during my 3 weeks of rads (pre Covid) and had a further 4 weeks off afterwards, but some people work throughout and prefer to do so. I drove to most of my appointments and could have done for all 3 weeks, but accepted kind offers of lifts from friends for my last week. It was tiring as it was an hour’s drive each way. And the company was lovely for that last week, and we made it an ‘outing’ by having coffees and a couple of lunches. But I definitely could have driven myself if necessary.
Re tiredness, I think it did have that effect but it’s hard to know how much as I was already taking Anastrozole (hormone therapy) and I have ongoing fatigue from it. I made sure I had a rest when I got home but more importantly for me I went for a walk. Walking has been my sanity saver throughout!
There’s a thread in the Diagnosis and treatment section for radiotherapy, which is worth looking at for others’ experiences, especially as it’s more recent than mine (3 years ago now). Many folk have the 5 day radiotherapy regime now, which is apparently just as effective as the old 15 standard sessions. I think you have a higher dose but just 5, adding up to less overall but with similar effectiveness.
Good luck with it all, it’s definitely a rollercoaster of emotions and it’s a lot to take in. I think my main advice would be, listen to your body and be kind to yourself. Sending love and a big virtual hug your way, HFxx
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