Hi everyone! I’m new here. My journey so far…..

FormerMember
FormerMember
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Well I didn’t see that coming! Found the lump late November, mastectomy & reconstruction 21st January 2022 & starting chemo April 22nd. I had an infection so just had a week long stay in hospital, on IV antibiotics so all good. Massive wake up call to not do too much after surgery & listen to the team looking after you. I was in danger of losing the implant who is called Betty btw but luckily a soft tissue infection & not in the fluid around implant. Still very scary & doctors say that it could still be an issue, the implant is a foreign body so there could be complications therefore to be very in tune with your body which I am. Back for check on Tuesday & on oral antibiotics to be safe. Oncology appt & then the tests begin to prepare for chemo. Was hoping no chemo but now I’m thinking it’s for the best. HER2 positive breast cancer so although it  hadn’t spread to lymph nodes it could be lurking somewhere! I still have my humour which is really helping me get through this but I miss my normal life so much! Cycling to school (I’m a TA in a reception class for 25 years) swimming in the sea when I can & at the local pool, etc. I’m used to rushing around like mad but having to retrain myself to rest.  I feel like the rug has been pulled out from under me. Anyway that’s my journey so far….. 

  • And breathe!  It's a fast turnaround isn't it.  I think learning to slow our life pace to give our body chance to recover is one of the hardest things as it makes us realise that life changed on diagnosis, both mentally and physically.  I'm 6 years down the line - click my name and see my profile.  Xx

  • I know what you mean about the lifestyle and the current limitations. One of the targets I have set for myself is to bring my body back to the point where I am able to get over a particular tall gate by climbing over it. This gate used to be locked and we used to scale it all the time to save ourselves having to walk the long way. So although nowadays this gate is always open, I keep eyeing it and promising myself that once I am cleared to do so by my medical team, I am going for that gate again, as a matter of principle. Slight smile 

    My guess is that you are going to be allowed to cycle first, but they may want you to hold back for a while longer on swimming, both due to possible contaminants in the water, and for the same reason we are not allowed to even have a bath for a while after surgery.

    But, physical activity is encouraged usually, so anything you feel able to do while on chemo would likely be viewed very favourably by the team. Do check with them first, though.

  • FormerMember
    FormerMember in reply to GreyCats

    Yes I can understand the swimming side of things but I miss it so much! It was more for my emotional well being as I find water so relaxing. I wasn’t a fast swimmer just one of those slow lane poodling along ladies Smiley anyway I know that’s out of the question at the moment. Again the cycling was more to get from a to b as I’m a n avid photographer so that’s good news if I can get back to that sooner rather than llost er! Thank you for your reply! I’m going away on the 7th April to Greece, I was going to cancel but the consultant said to go as it would do me good before chemo starts. I’m a little worried but it was a pre covid booking that has been put off again & again. Am I being frivolous even considering it? It’s not going to be hot so weather wise it’s perfect,  as a previous sun worshipper I know that’s another lifestyle change to consider. I’m going for a week with a back up course of antibiotics & a lovely friend to keep me company. I suppose I could sit in the sea as long as I don’t get ‘Betty’ wet Wink

  • FormerMember
    FormerMember in reply to GreyCats

    I’ll be thinking of you with that tall gate in mind Slight smile

  • FormerMember
    FormerMember in reply to Grogg

    I was amazed at the turnaround! That gives me hope that you’re 6 years down the road! Slight smile Thank you for replying 

  • Am I being frivolous even considering it?

    Your consultant has cleared it, so go ahead and enjoy! Smiley  

    As for chemo, even if you are temporarily restriced, try to remember that chemo is finite, a certain number of treatments, then it's about recovery and getting back to being able to do everything again. Assuming all goes well on Betty's side of things, swimming should be on the cards again by then too. By the way, you may be able to cycle while on chemo. Perhaps not on all days (sometimes chemo makes people feel rotten for a few days and then feel better again) but I wound't write it off yet. See how you feel once chemo starts and while you are at it.

    As for that gate, haha, yeah. The council here does weird things at times, so if that gate disappears completely by the time I am ready for it, there are a couple of trees nearby.....

  • Hi Linnypinny57

    Welcome to the forum and sorry to hear that you have been diagnosed with breast cancer. As Greycats said go ahead and enjoy your holiday. I was diagnosed with triple negative breast cancer in early September 2020. I went away for two weeks a week later with the blessing of my breast consultant and I found it helped take my mind of my  upcoming treatment and I had a lovely holiday.

    Wishing you all the best with your treatment when it starts.

    Best wishes

    Daisy53

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Daisy53

    Hi Daisy 53

    thank you! Yes I feel that it will be good for me to go. I will have done all the preliminary appts before I go, ct scan, oncology appt to map out treatment & the cardio appt so I’ll be ready to start the week after I get back. I feel in a good place emotionally as I know that the tumour is gone (with the mastectomy)& this treatment is crucial for it hopefully not to come back. I’m prepared for it not to be easy as my mother had ovarian cancer at 59 & I watched her go through the chemo treatment. However hers was stage 4 when diagnosed & the chemo was really just extending her life. With me I feel optimistic as it was caught earlier  & I am having a session every 2 weeks x 8. Then it’ll be over! How are you? Have you finished your treatment? I’m so glad this forum exists as I don’t really talk about it too much as I prefer to try & keep things relatively normal in my life. It’s really good to be able to unload with people that have been through the journey. Thank you! 
    Lyn Slight smile

  • Hi Lyn

    I’m doing good thanks. I finished my treatment last October. Like you I had trapeatment every two weeks by 8. After my operation last March I was given a further six months of chemo as there was a small bit of cancer left in my lymph nodes.

    I had the first of my yearly mammograms on Tuesday and will have the results in three weeks.

    Daisy53

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