Recent diagnosis of DCIS this week actually

Hi can I ask how long between diagnosis and the treatment. I have just been told after coming into hospital for something eyes that I have it and now have to wait for oncology to contact me next week with all the details. In ur experience do they act quite quickly 

the diagnosis result was given to me this week and my op will be in May just over a month away they have reassured that no progress of the cancer before this date 

yes I think they are very quick and very caring of your feelings and worries 

Thank you for that I have only been told by the doctors at the hospital so now have to wait for oncology appointment I guess that’s when I find out what they can do

it was a shock as I came in for something totally different.

good luck when u have ur op at least it’s not to long to wait

Hi

Welcome to the forum, although obviously you would rather not be here!  Yes, you are right it is a big shock when they tell you that you have the diagnosis.  On a very good note for you, the DCIS diagnosis means that it hasn't actually turned into cancer yet.  I had cancer and DCIS and they describe the DCIS as non life threatening which is a good thing to hear.  It also sounds quite positive that they are doing a wide local excision (previously known as a lumpectomy) for to get rid of the DCIS for you, rather than a mastectomy.  This operation is vastly less than a mastectomy.  I had a WLE and although it's an operation, I was operated on at 4.30pm and home again by 7.30pm. It was painful but paracetamol and ibuprofen were enough.  

They will give you exercises to do, make sure you do these as they're really important.  I suspect after, you will have radiotherapy too, which I didn't find too bad.  Just make sure you drink lots and lots when having this to prevent fatigue, but this will be after you have healed from the operation. 

My diagnosis didn't change from them discovering the cancer/DCIS to the time I was operated on and my DCIS was grade 3 (fast growing), so I think the 'fast growing' isn't as quick as we might think, even though as you say, they do act quickly.

Very best wishes for your operation when you have it.

Lesley

Hi lesleyhelen, I also was diagnosed with grade 3 Dcis  estrogen positive node free, but had my biopsy sent off to America for testing to see how quick it was growing, it got a score of 31 which meant I definitely need chemo as it has a high chance if coming back.. Did you have this test done, apparently if its below 16 you don't need chemo, that's what makes our treatment plans different. Mines changes from surgery and radiotherapy to adding in chemo.. glad you didn't have to get it.  And I hope Eddybuds doesn't need it either. Good luck with your treatment and surgery which is fine but you'll be sore for a few weeks and as lesley said keep up the exercises as they help with healing..xx

Hi Deeds,

I have a similar diagnosis DCIS high grade, large area 8cm plus already removed but positive margins, ER/PR negative. May I ask who arranged for a biopsy to be sent to US?  I know things vary from NHS Trust but maybe useful to know when I see Consultant next week. Thank you, and good luck with your treatment.  

It is quite a shock, isn't it.  I found being taken through the process by the medical team helped.  It was very structured, and I was given the next bit of information about procedures and what was needed as the weeks progressed - so I wasn't trying to take in too much at once (a 'just in time' approach, I suppose).  I lived in that 'process bubble' for some time and I think only now that surgery and radiotherapy are over has my head begun to think about what happened.  I hope you will find you way through this journey.  All the best, Diane.

I had a mammogram in April, was recalled in May, had a biopsy the following week, and then surgery at the beginning of July.  The surgery could have been sooner but I had some decisions to make regarding reconstruction, and ultimately needed two surgeons to be available the day of the operation.  It worked out well for me as it gave me time to sort things out at work and handover to a colleague, which has made going back to work much easier.  I think there are government guidelines that say surgery must happen within so many days/weeks of agreeing on what is to be done.

I hope you get your appointment soon.  I think sometimes the waiting can be hard, and the 'not knowing'.

Hope all goes well

Diane.

In May 2015 age 51 I was recalled from my first rountine screening mammogram for 2 areas of calcification (10mm & 5mm).   I was diagnosed with DCIS in the 10mm area only.  The smaller area was benign.  I had a WLE in July and 15 sessions of radiotherapy in September.  11mm high grade DCIS was final diagnosis after surgery. 

Hi Grogg

i had DCIS 10mm high grade. Diagnosed in November, had Wle in January and just finished radiotherapy 3 days ago. How did you find the radiotherapy as I am totally wiped out with the fatigue and have a irritating rash which is driving me mad.

I have an oncologist telephone appointment on Tuesday - but not sure when I will have a follow up with the consultant. I am worried that I will then be in limbo until the booked mammogram in November which worries me. Have you been supported ongoing ?

thank you for any information you can give me as to what might happen next

Rose