Diagnosed on 22nd Dec with grade 3 triple negative breast cancer. Awaiting chemo :(

Hi Deb, 

Oh bless you, sending you a hug. Sorry to hear your feeling down today, glad you'll have your friend for the next cycle, and a complete added bonus that she loves to cook! 

Hope your feeling better soon 

Claire (Flower) xx

Hey Deb,

Sorry you're feeling a dip.

You got us here babe. Tell u even if with partner, he may not be as helpful as u think or would like! Lol so you've one less thing to have to deal with. Your children are great to come help n you're lucky to have a super friend!

I think try to give yourself some little targets to keep going, even when in bed, you can say for example, write to someone, binge watch box sets, do simple exercises sitting up, knit, craft, origami, journalling, crosswords, sudoku, plan what to do when you have good days.

For me I am drawing up n planning our garden landscape, and also think how we will use our space better and redecorate when I can do so, planning n research is quite interesting. And when bored with that, I binge watch box sets

I know fatigue is just horrible but listen to our body n be patient.

I also wonder how I am going to feed myself as I am home alone most of the day! And u think the man will even help u make a sandwich, think again!lol

Hope your low passes soon, sending u virtual hugs xx

Cx

Claud, 

if my Mum could see this now she would so agree, she's been telling me for ages to work less and look after myself more. Now I think this will make me have to do it! I spend my whole life running round not giving myself much thought at all. 

Love the ideas for the bag btw, mine was very basic lol! 

Really hoping I hear from oncology tomorrow, she said Wednesday or Thursday, so its getting closer and I would like something a bit more set so I know where I'm heading. Is yours tomorrow? 

Claire xx

Hey Claud, 

Went today, I start chemo tomorrow 8.45am. How did you get on today? xx

Flower41 

Hi I found out today I have to have mri scan where they put a clip into my boob im scared stiff im back at breast surgeon this Friday so hopefully be starting chemo very soon.

How did your mri scan go? I hope your doin ok 

Speak soon xx

Hi Fifi

Thanks for the tip. I don't even think much about hair loss just getting thru chemo. But I know from my mastectomy, I am more laggy with emotional healing..I realised its what u can see also, not being a vain person but I guess it's more visual. That also and I don't want stares or other to pity me. Silly I know.

Well I will worry about that when time comes but tq for comforting and sharing your experiences.

Cx 

Hey Flower

You will do fine. Firstly, free your mind and let the nurses take care of things. Although mine don't volunteer any info much to control side effects but when I asked they do answer me. So keep asking if not sure and not really know what to ask. 

Day one was long 9 to 4.30m but I rather they do it slow and low than rush it. It started with Herceptin then Perjeta and then TC. The day went smoothly. They forgot my sarnie order but one of nurses ran to shops to buy me a sausage roll...hardly healthy but kept me from being hangry. Luckily I brought some fruit. They give u a bunch of meds to take home. So far I think the steroids is holding me up and I have just had my subcutaneous injection done by myself. Was proud of this! Woken up this morning day 2 with bit of headache but drank loads of water and it went. So many meds to take next few days. They warm up your hands just before canula so u should be fine...keep calm and relaxed. It helps your body not to be stressed and tensed...although its hard.

Do you know what treatment you're having Flower?

I will be thinking of u tomorrow...best of luck and sending u positive vibes.

Cx 

Hey Claud, 

I had FEC -T ( FEC part is first 3 and T is last 3) 

First time I have been on here as felt shocking! But today although still feeling like I need a lie down every two mins I do feel more with it. 

I opted for the cold cap, thought I would give it a go, first 20 mins were hard work but once I had passed that stage it was doable. I was there from 8.30-2.30 although that was mainly down to me having terrible veins, they want me to have a pic line fitted to make it easier to give the drugs and even just have the blood tests. They said it wont take so long either so that's a positive! 

Kids are giving me a bit of a wide birth, scared I think of how rough I look, I'm always running around and I think this has shocked them! My parents are having the youngest for the weekend so that she can have some normality

Take care 

Claire xx 

Hey Kel, 

Hope your okay? How did your appointment go? 

Sorry not been on here as felt so wiped out. I don't get scan results till 21st I think it is, they dont seem in a huge rush, think everything is drip feed to you tbh 

sending hugs 

Claire xx (flower)

Ah Claire 

sorry to hear this, I usually perk up day 8/9 after EC. Its a rocky road and I feel like my kids are missing out of lots right now but I'm fighting this to make more memories once it's all over. I've picked up an infection this time round on antibiotics. 

Thinking of you xx