Hi,
I am struggling to understand what is happening to my wife 'Maz' ; 3 years ago we started journey that we thought had beaten off breast Cancer. Initially a lumpectomy, followed by 3 months of chemotherapy, followed by a single mastectomy, followed by preventative surgeries, ovaries removed, second mastectomy and then reconstructive surgery.
Whilst recovering from the last surgery July this year, Maz was experiencing discomfort in her back, which we thought was probably muscular due to the operation. In August of this year we have been advised they suspect secondary cancer attached to the spine. Treatment commenced with a single visit of radio therapy and now Chemotherapy due to commence weekly 02/12/2021.
In August of this year we celebrated Maz's 60th birthday with friends walking on a beech in Somerset. Now Maz struggles to spend more than 4hrs out of bed, due to pain and discomfort. She has become dependant on painkillers, a walking stick and wheel chair.
The consultants have told us that if it is as they suspect, the cancer is not curable but can be managed. There seems to be lots of ifs & buts, with no one able to offer a definitive plan of where this is going to take us. I seem to lose a little more of my wife and best friend every day.
Hello
I am sorry to read your post and Maz's situation with her cancer. She can obviously get support from this site if she feels up to coming on here /ringing Macmillan. However, it does naturally impact those around the cancer sufferer significantly too. It's very hard to watch someone you love suffer and, as you say, lose a bit more of your wife and best friend every day.
I think these groups may be useful for you to join and speak with others who are may be in a similar situation as you.
Just click the links and join the groups. I hope you find some more support in either of these groups to help you through over the forthcoming difficult weeks/months/ years.
Kindest Wishes, Lesley
Hello Dale.13
In treating cancer, a lot depends on statistics and best-guesses, and many time there is an element of "let's try this and see how it goes." While test results should always be precise, the decision about best treatment options can sometimes be tricky and could change when additional information is taken into account, such as a patient's response to a treatment path, any new patient-specific medical information, any new knowledge in the field itself. This is where the "ifs" are coming from. The "buts" would be the product of the oncologist's explaining there are certain qualifiers that come from the inability to predict with certainty the result of any proposed treatment.
We each have our own scale of priorities. Some people would fight for longevity even at the cost of quality of life, some people would value quality of life the most. As long as you know what Maz wants and are willing to support her choices, you are already doing something that has more value than I can describe, and I am saying this as a patient. You too need support, so I hope you will check the links that lesleyhelen provided. I would suggest also making contact with a Maggie's centre, my own experience with them is such that I recommend them wholeheartedly to any patient or family member.
You are always welcome on this forum too, of course.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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