Hi
I’ve just joined the group I was diagnosed with bc in 2009 had mastectomy, chemo, and radiotherapy.
I was given hormone + her2- was given tamoxifen and exmastane for a total of 5 years
and was cancer free for 11years then beginning of October this year was diagnosed with recurrence of bc it has developed quite high under collar bone area so surgery isn’t an option . My treatment plan starts tomorrow which is hormone and target therapy both tablets letrozole snd imbrance.as it is the same as the last time.
I will have to take this for the rest of my life which I find hard to except
I feel I can’t go on living I’ve tried to be positive with my family and my close friends and they think I’m handling things well but the truth is I’m not!!
ive just had a terrible moment with my husband and feel so sorry for my outburst he has been so supportive the first time and this time but I’m really struggling to cope with life in general I feel so envious of everybody around me and wish it wasn’t me having to go through this I’ve just retired this year and was looking forward to so many happy years and not sure of anything anymore.
so sorry to go on I usually get through things but not doing to well at this present moment I’m feeling very sorry for myself which sounds selfish but that’s how it is
It all seems like a terrible dream wish I could have my old life back
thank you for listening to me x
Hi Chris54 things do sound hard for you right now, and I am so glad you have shared your feelings.it is so hard to put on a brave face to your family and friends. Do you think any of them know how you really feel, they may be worried to ask. It is for me personally easier to share my feelings with someone I am not close to, perhaps it might be the same for you. Sending you love xxxx
Hi Chris54, So sorry to hear that you have a recurrence of your breast cancer. You must be in shock but you have come to the right place for support. I am sure others will be along to support you who are in a very similar position as yourself. Putting on a brave face to others isn't always the best way to go and can be very wearing .Perhaps you can share your true feelings with one of your friends . You have already made a good start by coming on here. I expect you thought that you were home and dry as I did ( see my profile if you wish)and then it came back. No easier the second time around I know but your team will have made an individual plan for you. Take it all one day at a time and live life to the full as much as you are able. Sending you big hugs Xx
Hi Squattie thanks for your advice I actually got my tablets today and start them this evening a little nervous but glad I’ve reached this point as I know now I am treating this tumour and hopefully it will be successful and keep things stable.
i had a good chat with the specialist nurse which helped me a lot and she has referred me for some counselling via telephone which I’m sure will help.
Thankyou once again and hopefully we can stay in touch .Take care xx.
Hi Kwissy,thanks for your reply ,I’m so pleased things are good for you ,it must have been a terrible shock after all that time!
I have just got back from my appt to collect my medication which I start tonight ,I must say I’m a little nervous but I’m sure I’m being well looked after .They will be monitoring me closely b/t every 2weeks and if ok treatment of palbociclib every 21days with 7day break and letrozole continually.
It was good to have a chat with the specialist nurse who was very reassuring re the meds etc and being able to lead a normal life which is what I needed to hear.she also referred me for some telephone counselling which I think willhelp me .
im sure as things progress and hopefully the treatment works well for me I will start to feel more like my old self and start to trust in myself more if that makes sense.Take care xx
Hi Chris54
im so sorry to read your message. It was like reading my own story as similarities are crazy.
I too was first diagnosed in 2009 and after 11 years thought I’d left that way and truly in the past!!
I am waiting on biopsy results for full prognosis and treatment plan on Thursday. But like you feeling I wish I could have my life back to normal.
I hope the start of your treatment went well and you are feeling well and will gain the same strength that got you through your first fight with this crappy disease !!
Take care
Ria
Hi,Hope the time flies for you between now and Thursday. At least then you will hopefully have a plan of treatment .I will be thinking of you Sending big hugs xx
Hi Ria,sorry to hear that you are in the same place as myself,I feel less anxious now I have started my treatment unfortunately my tumour was inoperable which worried me quite a lot ,but my scans were all clear everywhere else so I was very relieved as I was imagining it may have spread .
so I am having the palbociclib and letrozole treatment to concentrate on keeping the tumour stable and hopefully some shrinkage.I took my first tablets last night slept fairly well no nausea and feeling ok so far! .I know it’s early days but hopefully I will get through this without to many side effects (fingers crossed.)
im so pleased I didn’tneed chemo this time although It wasn’t to bad for me personally ,but the target therapy is so much kinder to your body .Thank goodness for all the cancer research that is being done and the times that we live in.
Do keep in touch ,and will be thinking of you on Thursday.
take care Chris x
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