Hi, I’m new to all this and new thought in a million years I’d be here!
I have had a roller coaster of the last 2 and a half weeks. I had a routine mammogram (at age - a very young 54), I was called 2 days later asking me to attend the breast screening centre to repeat it. Found myself having mammogram, ultrasound, biopsies in 3 areas of my small and now very painful right breast which is bruised beyond belief.
Returned on Wednesday last week to be told I have widespread dcis, medium and high grade and the only treatment is total mastectomy. Im in complete shock. I have a consultant appointment on Monday 2nd so I should know more then.
I have read around dcis as much as possible being an ex nurse but would appreciate any advice regarding questions to ask on Monday.
Thanks in advance
Hi Lesley,
The breast care nurse who gave us the results at the screening centre said that because it’s widespread throughout the breast mastectomy is my only option. My husband and I were so shocked and immediately asked about alternatives but she said there weren’t any. I’m devastated and find myself awake most of the night or having weird dreams I’m usually such a strong together kind of person but this has really knocked me sideways.
How about you , how do you find yourself here?
S
I have a 5cm lump in my left breast with one lymph node affected. Mine is er+ and would not respond to chemo so am looking at a full mastectomy with lymph node clearance some time in the next few weeks. I have had a CT scan which shows it hasn't spread elsewhere. I may need RT after the op but it depends on what they see on the tissue they remove,
Hello Ricecrispie
I was recalled from my first routine mammogram in May 2015 age 51. I had DCIS 11mm high grade (medium on biopsy but upgraded after surgery). I'm a G cup so they did a wire guided WLE (lumpectomy). I had day surgery then 15 sessions of radiotherapy. I had no pain once I left hospital. No chemo or hormone therapy as no invasive cancer and mine wasn't hormone receptive. If you click on my name it takes you to my profile and what's happened since!
I know you are reeling, planning your funeral, angry with the universe but you are not checking out just yet. Once you have firm treatment plan from your consultant you'll feel better. I didn't ask much at diagnosis but BCN came to my home 2 days later and my daughter made me ask specifics of size, grade etc. BCN & consultant both thought I took the news well - they didn't see me at 3am after googling ! They initially discussed at diagnosis breast reduction on both side to be cosmetically balance but said my choice. I thought about it, decided against but a week later told it wasn't an option as at their weekly meeting they decided they could get could result without so I just have slight dent in top of left breast. I'd agonised over decision and in the end it wasn't an option,
Glad you found this site as it's a safe place to unload. You don't have to make others feel better about your diagnosis just focus on yourself xx
Hi Lesley,
I’m sorry to hear that but great news it hasn’t spread. Sounds like you have a bit of a journey ahead but you sound quite positive. Please let me know how you get on.
S
Same thing happened to me 6 years ago..was called back and thought I was just going to have my mammogram redone. 2 hours later I had had biopsies done in my right boob. Ended up have DCIS and area of A typical cells. I had big boobs 38f. I had choice of lumpectomy in two places or mastectomy..I choice lumpectoirs as was told it was Pre Cancer, followed by 3 weeks radiotherapy
January this year had mammogram and I had a.very small area of invasive cancer so I had no choice but to have a mastectomy.. This was done on 7th April this year. The OP went really well and I didn't have much pain, only felt like sunburn on my side as I had some lymph nodes removed which thankfully were clear. Just on Letrizole, vitamin D/calcium tablets for 10 years. It seems so horrendous when you know you have to have a mastectomy but it is much better than still having the cancer inside of you. I wear a prosthesis now and no one would know if I hadn't told them. Wishing you all the best for your treatment.
Booby J
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