DCIS

Hello,

Sorry you find yourself here but you have found the best site to glean the information you need. There will always be someone who has had a similar treatment or is at a similar point in their plan. 

As you say, it is all still a shock but already you've made some good decisions. You must put yourself first. Breast Cancer certainly has a good success rate for recovery but some of the treatments may not be pleasant and there will be days you'd rather forget. Once you have a detailed plan there will plenty of practical advice for coping if you need it but until you know that, no point in preparing for a treatment  you don't  have.

If you need reassurance that the treatments often work well...my own cancer, also found early but triple negative, was removed by lumpectomy in 2015 followed by chemotherapy and radiotherapy to help prevent it's return.

Keep in touch. Don't be afraid to ask about anything that confuses or concerns you......or simply express your feelings. You will usually find someone who will listen and support. If you like a chat.....try Awake. The posters there laugh a lot as well as dealing with serious situations.

I hope all continues to progress well for you. As you say.....stay Covid safe....

Love Karen

Thank you Karen. X

I was diagnosed with DCIS of 12mm in my right breast in mid September following a recall from my mammogram due to calcifications. A biopsy confirmed the DCIS diagnosis. I was absolutely devastated but was told that it was easily treatable. The 2 weeks waiting for surgery were really difficult to get through as I am a very anxious person but my breast nurse and Macmillan were fantastic and told me not to look too far ahead, just to the next appointment. I had WLE surgery in the morning on 2nd October and was home just after midday. I had worried so much about the surgery and it was nowhere near as bad as I had imagined. The surgeon got clear margins and there was only a tiny bit of DCIS in one duct so good news. 3 weeks post op and I feel absolutely fine.

Well done you that is great to hear. I agree that having support from a great breast care team is going to make all the difference.  

Are you going to have any other treatments? 

Debs x

Hi Debs, I have to decide whether I have 5 sessions of radiotherapy or not. I am ER positive so am also going to take letrozole. The consultant thinks radiotherapy will have little benefit but I can have it if I choose to. My van Nuys score is 6 and radiotherapy is recommended for a score of 7-9.

My surgeon has already said that I will probably have rt. 

Do you have a date for your surgery yet? x

No not yet but ive got a results appointment on 13th and already been told I will be having further surgery to provide safe margins. I was told 2-3 weeks after results appt. The issue they have is that it wasn't seen on mammogram or ultrasound so MRI will giveth better idea if there is anything else that needs attention. That will help them decide how big the surgery needs to be. 

Welcome but sorry you find yourself here.  I was diagnosed with 11mm of high grade DCIS in June 2015.  I had surgery then 15 sessions of radiotherapy (was standard then).  Now I just have annual check up.  If you click on my band you can see my story xx

Hi Carol

Thanks for your encouraging message. Van you tell me what NEDDY stands for please? I've got a lot to learn as a newbie.

I will feel better after my MRI as there was a concern that this wasn't picked up on either mammogram or ultrasound. So need to make sure that there aren't anymore little buggers hiding in there.

Thanks again

Debs