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FormerMember
FormerMember
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I got diagnosed with BC at end of April with invasive ductial cancer. Started chemo middle of May. Had surgery at beginning of October  and lymph node biopsy. Was not told if Her positive etc, at start but i did go and get pathology results, which show esteogon was boarderline and HER negative. When I question what stage it was, as been asked several times, told not decided until after this operation. I know that my lump was 5.5 at start but no lymph nodes effected and that lump was a fatty lump with the cancer cells in it. Chemo did reduce lump, and i had very little side effects apart from tiredness and fatigue. Hair did thin out but I did not lose it at all. 

falling apart mentally now, think that i got seen quickly and started chemo promptly and having to get the department to deal with the underlying health issue delayed the dealing with the diagnosis.

  • Welcome to the club no one wanted to join.  This has been a tough time so be kind to yourself xx

  • HI , Just wanted to send you a great big hug- I think we all have a point when out of the blue it suddenly hits us. While the various treatments are going on we are too busy but afterwards when we have time to take it all in it suddenly seems to catch us unawares. You will still be recovering from the surgery at the moment but I hope that you are able to do the arm and shoulder exercises.Take care of yourself and take a few deep breathes- it does get better honestly as time goes on . Sending more hugs xx

  • FormerMember
    FormerMember

    I hope you’re recovering well. I know how difficult it is waiting for answers. After my diagnosis everything moved so quickly but I didn’t have the answers to everything. It wasn’t until 2-3 weeks after surgery that I received all of my pathology and was relieved to hear my initial grade 3 diagnosis was now a grade 2. I’m still waiting however for the Oncotype results, this will be another 3 weeks but fingers crossed my next treatment will be radiotherapy. Some days pass slowly, others quickly and more happily since my surgery. It’s still early days and I’m trying make sure I do my exercises and regain my strength. 

    Take care x 

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you, mentally moving up. Exercises sort of went out window, but have been using arm, and doing gentle stretching as i do have shoulder lock issues in the side i had surgery Face palm♀️i have appointment for Tuesday for results.

    A lot of communication issues with the clinic as he originally told me three rounds of chemo, surgery in august and home working till September, get to oncology and discover its six rounds and not three, and if radiotherapy has not been discussed it was not happening, go to discuss surgery (not much discussion rather told that was what was happening) radiotherapy dropped in and told it was always on the cards! And the surgeon has been rather reluctant to involve another department in the surgery even though it is needed and they had work to do on the morning of surgery, he just seen to disregard then totally. The first surgeon i saw claimed not to know what it was, asked me how spell it and then refused to contact the department to get clearance before doing biopsy, and was only going to contact  them if i had an issue during biopsy! I had to get in contact with them afterwards to tell them about the biopsy and subsequent result, which also needed monitoring during chemo!

    the waiting in between has been the hardest and i set myself to think forward short periods of time as i thought to far ahead, 

    Sort of knew that mentally it would kick in now, as it has been quick start due to covid, it was only three weeks between getting results of cancer and starting chemotherapy.