Mastectomy without reconstruction

  • 12 replies
  • 255 subscribers
  • 381 views

Hi,

I had a my mastectomy surgery on Thursday following a diagnosis of high grade DCIS and after 2 lumpectomies without clear margins this was the next step.

It was hard to hear this needed to happen and loads of decisions to make but I decided to not have reconstructive surgery as after having 2 surgeries already I know I couldn’t cope with a longer recovery time and ultimately I want them to confirm it’s all clear and I can focus on my healing journey.

I have a daughter who is 4 and the hardest part of all this is not being able to be as active or present for her.

The surgery went well and I’m home recovering, however the drain is giving me so much anxiety I’m constantly feeling like it’s going to come out or I’ll knock it even though I’m hardly moving about , I know this is very unlikely to happen but has anyone else felt like this? 
I will be glad when I go to have it taken out on Tuesday!!

Staying flat was a choice that felt right for me but I find comfort in knowing I can have reconstructive surgery at any point when and if I decide to do this but for now I will focus on gaining my strength and learning to love this new version of me

it’s definitely been an emotional rollercoaster but I’m grateful for my medical teams , family , friends and the Macmillan community for all their support couldn’t of done this alone. Xx

    1. Hi Fran, had a mastectomy & first night at home, the drainage tube came out of bottle. Couldn't place it back in bottle so rang emergency tel no & a male nurse came out to my home. This was midnight. He was brilliant & fixed tube into bottle. During the following week, nurses visited me each day & checked bottle, drainage tube & bandages. As I live on my own, nurses reassured me each day all was ok. Hope all goes well with you. Just reach out to district nurses for any help you need. They are brilliant. Like yourself found lying on my back with bottle hanging over side of bed was ok. Then found I could lie on my side & fell asleep quite comfortably. Wish you the very best for the future and if you decide on reconstruction. Just give yourself time to adjust. xx
  • Hi,

    oh gosh that must have been scary bless you but I’m glad you got it sorted.

    Its just so overwhelming anyway so this Drain doesn’t help and most of it is in my head , on count down mode for Tuesday where it will hopefully be removed!!

    Hope you are doing ok now and recovery has gone well, sending hugs and thanks for the message xx