Hi all,
Looking for anyone around 27 or under 30 who has been diagnosed or anyone who has had IBC. Please shed some positive light - all I tend to hear is ‘oh you are young!’
I was diagnosed back in November after discovering lump under left breast in September month after followed by swelling, alot of pain and then redness. Back and forth from GP as not easy to diagnose, they thought matisis, so prescribed antibiotics and eventually refered for a scan. (Not got kids) Started chemo after 2 weeks of diagnosis and nearly finished. Tumour has shrunk from 7cm to around half the size. Due to have Diep flap surgery followed by radiotherapy. My diagnosis is ER+/PR-/HER2-, in lymph nodes. No family history, genetics show no BRCA gene.
Would be great to hear from anyone who has similar diagnosis and positive stories. You can never be too young!!! Xx
Thank you so much for that, and I’m so happy to hear you’re doing so well! There really is little online and what there is is scary! So it’s good to hear positivity!
I will let you know how I get on, really hoping this rash disappears soon as otherwise regardless of biopsy results I’m guessing I’d have to go for further tests as ibc hasn’t been tested for as the rash wasn’t there last Monday when I had my biopsy xxx
I feel for you hun. I had chemo, a mastectomy and radiation and someone told me that it would surprise me how quickly the treatment would go but I must admit they were right although after my first chemo I didn't want to go back but I did. We find an inner strength in us and I found a positive in every day. Tomorrow is never promised hun. Hope always and good luck that treatment passes quickly for you too.Sending healing hugs. Jxxx <3
I feel the same after my first chemo side effects. I really don't want to go back for further chemo, there are some days where i feel I won't make it in life and Some times lose hope. Will I ever be the same person. Thank you so much for telling me your experience and strength xx
Hi hun I don’t think that you are ever the same person you were and I know having cancer makes me look at things differently none. I’m not quick to anger and I have learned to be grateful for every ay. Always tell the chemo nurses how your treatment is affecting you and if you are having bad nausea they can change about your meds to see if that helps. My first round was the worst as I didn’t k
ow what to expect and when I had the second one I knew that I would have about 5-6 days where things weren’t easy but I knew that things would get better and what to expect. I found that it was good
to do something on the ok days to lift before the next one. Have you tried writing a journal and put your emotions in to that. At the moment it sounds like to are a little lost but cancer doesn’t de
ine who you are. Do you have close friends and family that you could talk to. You will find the strength to get through this Star. Look at it that it is a season of your life at the moment that will
pass. If I can help at all send me a message and I will be hear to listen. Sending you a big hug. When is your next chemo? Jxxx
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Thank you ever so much for listening, I do feel alot lost at times and can get overwhelmed. After reading your message do feel a bit better and thank you for that ️. My first round was also not a good experience as I didn't know what to expect. I've just had my second round of chemo yesterday and so far ok as it does not hit me until the 4th day. My chemo is
ery 2 weeks for the first sets of 4 then another 4 every 3 weeks , in total 8 chemos and then surgery
. I feel fear of if I can cope with the rest as I hear that it gets worse and more intense with each cycle. I don't know how long I can go on for even tho I have alot of support frm everyone I stil
feel lost and detached. Please keep posting to help.others to get stenth though these hard time. Lots of hugs
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Hi Hun please never think that you are on your own. A cancer journey is a lonely one and you will probably be making sure that everyone else is ok before yourself. The first chemo for me was so awful and I was so unwell but when they got my meds sorted for the nausea and acid reflux the side effects were not as bad. It will seem strange but when you can work out what your bad days are be kind to yourself and know that you will start to feel better before your next chemo. On the days you feel stronger get out for a short walk or buy yourself something nice or a get together with family and friends even if it is in your garden. How are you feeling after this chemo? Are you cold capping? I didn't as I didn't know if I could stand it. It was around this time that after the second chemo that my hair started to fall out and i didn't know that losing it could be uncomfortable it felt like someone was pricking my head, it lasted a couple of days and then it was ok. Buy yourself a little cotton/bamboo sleep cap as I didn't realise how cold my head would feel in bed. There is a wonderful site called https://lookgoodfeelbetter.co.uk/ where you can join online classes or if you are near where they hold classes you can do face to face. There is a wonderful how to do your make up and brows if you lose them also how to do your wigs or ways to tie your headscarves, hand and nail care I nearly lost my fingernails but they are a little healthier now. If you are having a mastectomy there is another wonderful charity https://knittedknockersuk.com/ these lovely ladies knit cotton soft boobs and they will also knit you waterproof one's if you like to swim. I hope that I'm not putting too much on you listing these .hun <3 . You have had news that you have cancer and your wee head has still to catch up with what is going on in your body it is a big shock and you haven't had time to accept what is going on as it happens so fast. For me I found that I wanted to be upfront with my nearest and dearest and promised not to hide things from them and to find something positive in each day. Do you have a good group of friends that can maybe do things for you to make it easier for you on your bad days. Do you have a Macmillan centre or a Maggies centre that you could visit for some advice?I'm here if you want to chat hun and you will always have others on this forum that can help you and listen if you need to talk. You have had your second chemo and I really hope this one isn't as harsh for you. Take all your meds they have given you to help with the side ffects and drink plenty of water to help flush out the chemo. I found that chemo gave me a horrible taste and lemon sherbets helped with that. Sending you a big warm hug. Jxxx <3
It's Ac chemo the one I'm having every 2 weeks and also taking booster injection for 5 days due to having a 5 year old.not sure if Ac chemo is intense, all I know is it will be 4 dose of AC chemo an then after 4 dose it may continue with a difference type chemo all depends if the cancer Srinks after the first 4 doses, if it hasn't srinked then will not continue with anymore chemo. Will be going to have a surgery instead so still am a bit confused and concerned on what's the outcome will be and if the first round of chemo is intense or will the second round of chemo be intense that i will be getting every 3 weeks. Thank you for being so lovely, really appreciate it. how is things going on with you hun? Would like to know how you have coped though out your journey xx
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