Tamoxifen

Thankyou, I was hoping I didn’t have to have radiotherapy as I had a mastectomy but apparently the margin was only 0.6 so advised radiotherapy.

I hope you’re not suffering too much with chemo .

Hi 

I started on tamoxifen 4 weeks ago . I also suffer with acid reflux and was on lepatrozole . Emotionally I’ve been floored. As I also needed to take out mirena coil . So my hormones have been flipped in a short period of time. 
I was told I’m on these for 10 years. Not sure why when everyone is 5 years. Seems odd. 
start radium next week. For 5 sessions. 
it all seems a blur of emotions  

tired and deflated  x

Hi if you’re like me, the ‘falling off a hormone cliff’ feeling does improve as time goes by. I’m feeling relatively healthy 8 months after my mastectomy, apart from a few aches and pains. I have reflux problems but then I’m very heavy currently and that’s probably as much a cause as the Tamoxifen. My gynaecologist warned me that removing my Mirena coil and going on Tamoxifen would be rough at first, but it makes a huge difference to my risk of recurrence 

Thanks for this Ana. I wasn’t told much to be fair. But it has hit me like a brick wall. Very tearful when I’m normally strong. 
it is early days. So I’m hoping it gets easier as my new body adjusts to the hormone changes. I’ve just had a really rough 3/4 months. With all of this and other family issues. So probably all came  at a bad time together. 
onwards and upwards x 

I hear you Army. It’s rough and psychologically I’ve struggled, but it has got better for me, and hopefully you too

Thank you  glad your doing ok now. Guess it is just an emotional roller coaster x

PS Army, strong people cry too

Wow I could have wrote that myself, was really worried about taking that tablet every day, all other treatments I  just took in my stride but this was down to me, I had read lots of comments telling me how bad I’d feel and like you said you want quality and of life, i  have young daughter and full time job so couldn’t be in constant pain, finally built up courage to pop first tablet about 2 months after being given prescription.  Ive nearly been on it 12 months now and not felt as bad as some, joints ache a bit when going upstairs and getting out of bed but would that have happened anyway with menopause.  Its really not been that bad as some people experience so have been lucky.  Hopefully same will apply to you good luck fingers crossed for you

I’ve just started a different brand of tamoxifen and ankles don’t hurt as much but got a niggling head ache, read comments to say different brands have different effects

Hi Mollyb75,

so good to hear you are managing well on the Tamoxifen. I’ve been taking half a tablet for the past couple of weeks to break myself in slowly, will brave the full tablet soon . 
Im having serious hot flushes but was getting them during chemo so not sure if it’s the Tamoxifen or effects from chemo induced menopause. 
I have also heard that different brands can have different effects so hopefully if I have too many side effects I will ask to try a different one.

keeping everything crossed.

Hi, I too was worried about taking Tanoxifen but knew had to as my cancer was v.large and in 7 lymph nodes.  I started 10 days ago and so far no side effects apart from a bit of itchy skin.  Not sure if side effects build up over time or start straight away but so far so good for me x