Mastectomy aftercare

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I had a mastectomy yesterday at a day surgery unit. I was discharged 2 hours after my return to the ward…..which was fine with me. However, when I got home my wound was bleeding. There was no dressing as it was closed with glue. The emergency number I was given by the breast unit rang out and no one answered. I rang another number that my breast nurse had given me after my lumpectomy a few weeks ago. That was answered by an admin who suggested I rang 111 or go to a&e if the bleeding was profuse.

It bled more overnight and I rang and left a message for the breast nurse. She didn’t ring back until this afternoon, so I tried my doctors surgery this morning who said that they had a fit in clinic but I’d have to sit in the waiting room indefinitely. She said district nurses won’t do home visits for anyone other than those permanently bed ridden or otherwise unable to get in.

So it seems to me that there is absolutely nowhere to turn if you find at 9pm after being discharged, that you could do with some help or advice. This evening my bleeding started even more. Breast nurse not available, emergency number doesn’t work. Tried day surgery ward which was open and they gave me another number to ring……..where I was told to go to a&e if I was worried. 

What is anyone else’s experience? There is just no back up at all is what it feels like right now. I know it’s not heavy bleeding, just bright red and right along the scar. We’re just lucky we happen to have enough surgical dressing to cover it. 

im just feeling so tired and emotional.

  • You poor thing. Having the auxiliary wound is bad enough without infection. Glad it’s cleared up. Hope I’m sorted too…..feel more like it at least now! Xx

  • So glad to hear you are feeling better. I just can imagine how distressing that must have been for you! I had nurses in and out all night monitoring me!!!!  I’m so happy you are ok. This is a difficult enough journey! Lots of love xx

    Jane

  • FormerMember
    FormerMember in reply to Bunty500

    Bunty500 so pleased you have been seen and feel better, I bet you get a good night's sleep tonight.

    You take care of yourself x

  • Thanks coffee…..I certainly think I might. And soon! You take care too.

  • You are so right about aftercare actually being abysmal. I asked the Breast Surgeon specifically what I had to do if something went wrong with my breasts right after surgery, whilst I was at home. I wanted to be prepared, and make the right decision on which surgery to choose. She said that they had breast clinics/wound clinics, which they do have. However, it is true that straight after the op, if something goes wrong (I fainted unexpectedly) Day Surgery don't want to know at all. I just lay down on the floor for a bit with my drains while my husband panicked. We decided not to call 999 as I began to feel better, and climbed back into bed while he watched over me. It was all a bit upsetting and I really lost a lot of confidence after previously feeling very well. The fainting continued and one of the Breast Cancer Nurses actually denied that she had removed the drains on the day she did, saying she wasn't on shift that day.

  • Omg! That is incredible. To deny what happened points to a blame culture being present and that helps no one. The nhs is grossly underfunded and the pandemic has only added to its woes. Like you, I never realised the extent before now. I think the loss of confidence is a big thing. You come home and accept discharge 2 hours after returning to the ward because we’re in a pandemic and we understand the pressures. But, like you, to find out when you’re at home, in need and helpless that a&e is the only out of hours post surgical backup is completely overwhelming.

    I hope you’re on the road to recovery now. Take care xxxx