••• June BC Radiotherapy Club 2020 •••

Hi all, I finished my radiotherapy on Tuesday, 9 days, 5 and 4. The only side effect I have experienced apart from some tiredness is the appearance of spots which were a bit itchy - although less so since the weather has got cooler and I started using hydrocortisone cream as recommended by the nurse. I had a phone call call this morning from a radiation doctor asking me various questions - about my skin, pain, soreness, mobility of the shoulder. She said I would get a few of these calls over the next few weeks, I get the impression they are closely monitoring Fast Forward as I think it is relatively new in Ireland. I think she was quite interested in my lack of any real side effects.

Hi social dancer, 

Well. Done for getting through it. My RT starts on the 15th of June so the week after next and it's nice to see that you have minimal side effects. Did you get the cream during the treatment or did the breast nurse prescribe it? Did it help?

Please stay in touch to let us know how your are recovering too a sky oncologist told.me.i would be tired for a good few weeks after RT. 

Take care, take plenty of rest, xxx

Hi All 

1 down 4 to go.

I don’t know what I was worried about.

I did feel very chilled this afternoon Couldn’t seem to get warm . Has anybody else had this or ? due to being tired ?

I used gel R1 immediately post and I plan to use R2 also

Jostar - if you mean the hydrocortisone cream, the nurse recommended it, 1% hydrocortisone cream available over the counter. Otherwise I have been using aqueous cream to moisturise twice a day since the planning scan two weeks before the treatment started. My daughter’s friend, who recently finished her r/t, said I should not forget to moisturise the collarbone area as she got a bit burned there. The aqueous cream can also be used instead of soap which was useful during the recent very warm weather. 

Hi , I had 15 rad sessions finished 15weeks ago .I am still struggling with the tightness in the arm out and crunching in my shoulder , also sharp shooting pain in my breast .I have done my exercises 3 times a day since my surgery in August last year.I have been sent a link for a physio app from my breast nurse , who is going to ring me in 4 weeks to see if the extra exercises have helped .I got post surgery bras from M&S and they are so comfortable.

Can I ask everyone who has completed rads what you’ve been told re arm exercises? My range of mobility is fine and think I could cut down on them from 3  times a day (want some of my day back!), I am at risk of lymphodema given ANC but would reducing the number to 2 (or even 1)  create extra risk?

Also thought you’d be amused by my friend who has likened my poor red armpit to a baboon’s bum...I just thank the lord I don’t have to jump on cars at Longleat...

Hi, strange you mention the chills as I do go from normal temp to feeling chilly to have ridiculous hot flushes, the chills last longer than the flushes..I suspect this is normal but intrigued to know if others are experiencing too, and lets face it nothing should be surprising after all we’ve put out poor bodies through!

Well done to those finishing unscathed!

Sam

2 down 3 to go .

Mr Radiographer says I have  been such a good Girl I can Have Week end off. How many times do we think he has used that line
Feeling shivery again this afternoon . 

ClaireRus, hope you've warmed up a bit over this weekend.

my RT is scheduled to start on 24th June, I shall be mightily upset if my Radiographer doesn't tell me I can have the weekend off as I've been such a good girl . 

Seriously though I hope your last two sessions go well. x

Hi I had a down day yesterday .Stayed in PJs and had a sofa day .Better today . Skin I am not noticing any changes. I am using R2 very regularly 3 more sessions then will ring that  

Hugs to all x

Hi claireRus

Why will you ring the bell?