I'm new to the site and been diagnosed with breast cancer. I had surgery 3 weeks ago and had one of my lymph nodes removed which shows signs of cancer. I've been told today I will need further surgery as there wasn't a clear enough margin from the previous surgery and they are talking abut removing all my lymph nodes, although my surgeon isn't sure that would be best. I feel sick and frightened, and struggling with the fact it's in my lymph nodes and what that means. If anyone has been in this situation and managed to get through it I would love to hear from you
Hi Sarahcrocodile,
I also worry about no Chemo but my Team are so not into giving Chemo to Hormone Dependent tumour patients, mine was 4cm which is why I worry.
Hi Westie15, so sorry to have missed this message and you’ve been awake in the middle of the night. I know how that feels.
I didn’t read anything on the internet, I was so scared, so I didn’t really know what it all meant, I didn’t actually know v much about cancer, however now I’ve had my lymph nodes removed I’m pleased they’ve gone. I think it’s better for them to have been taken out and although initially it worried me about the whole lymphedema thing, I’ve not experienced any problem so far and put that down to yoga and doing the exercises religiously.
I was diagnosed a year ago next week and my last treatment finished on the 6th May. I’m now on Letrozole for 5 or 10 years and Leuprorelin every three months. Not sure yet if I’ll have the zoledronic treatment as I cannot have a bone density scan yet because of the virus,
I feel like my life is really getting back on track and yours will too. If you want to chat if your scared, very happy to talk thru things with you. Just private message me.
Sarah x
Thanks Sarah, I'm now scheduled to have all my lymph nodes removed on 1/6. Worried about lymphoedema as well as everything else. I've ended up having to get something from my doctor for my anxiety which I'll take tonight for the first time. I hate that it's another medication I'll be on, but my consultant was really worried about my mental health and that I wasn't coping. I've not been sleeping well, have no appetite and if I do sleep I have bad dreams.
I've tried to keep myself busy today, and forced myself to eat something - I'm trying to eat more healthily as I'm aware my body needs nourishment. I'm also trying to avoid the internet because it's not helping me.
Not sure how you go about private messaging?
I'm so pleased you're feeling things are getting back on track, and hope I'll get there too.
Liz x
Hi Westie, I was in your position 3 years ago cancer was in 1 lymph node so surgeon took 24 out. I asked him why did you have to remove all of them? He said just to be safe, had lumpectomy and radiotheraphy was offered chemo but didn’t want it as I was 72 at the time , my surgeon recommended it but my oncologist said I didn’t need it as it was only 2%, think I have made the right decision for me. Good Luck.
Hi Liz
I’m sorry you’ve been feeling so anxious and that you needed some medication. I completely understand your feelings, I also couldn’t sleep and then when I could I had bad and v vivid dreams. You haven’t got long to wait until the 1st which is good - I assume you’ll be a day patient?
You definitely need to avoid the internet, just don’t look. I barely ate anything when I was going thru chemo because I had mouth ulcers so I wouldn’t worry too much about not eating much. I tried to just eat what I fancied when that was happening and once you take the pressure off yourself it’s much better. Try to be kind to yourself and know that what you’re going thru And feeling is completely normal and understandable.
I’ve added you as a friend, so when you accept we can message privately or I can send you my number if you’d like to chat in person.
I hope you get some sleep tonight.
Sarah x
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