*** May 2018 Breast Cancer Chemo Club ***

FormerMember
FormerMember
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Sorry to see your Maypole is being Replaced by a Chemo Pump and Bag Stand :(

A big welcome to all those starting or continuing their chemo this month.

The chemo club is a great place to help support and advise each other during your sessions.

You can use the 'Save In My Favourites' button just to the right to put this discussion on your profile page for easier access.

Lots of helpful tips for getting through chemo from those who've been there can be found clicking here: Chemo Tips

If you found something helped you during chemotherapy, do reply to the blog and add it to the list.
You can use this link If you need to refer back to the April Chemo Club.


Wishing everyone minimal side effects - G n' J

  • FormerMember
    FormerMember in reply to FormerMember

    Hi DL,

    I had the same problem after 4 sessions so had a PICC line put in last Friday (12 to go), it's a doddle, doesn't hurt and I don't even know I have it in most of the time!

    Don't wait, go for it...it only takes one cack handed nurse to ruin your arm for months, don't take the risk!  

    If it's too 'late' as you only have a few sessions left, I hope you get a gentle nurse...  : )

    I found anything with ginger (preferably pure ginger, cold ginger and lemon drinks, cold tea and ginger etc) help with nausea, as does water with lemon juice in it for that funny slimy mouth. Maybe look into taking the drug ondrasetron / Zofran which are little patches that you melt on your tongue and instantly stop nausea, they really worked for me! As does Metoclopramide...

    Oh, and fennel, straight from the fridge

    Let us know how you get on, I'm still struggling...

    Good luck!

    maggiemee x

    make-up is the answer...

  • FormerMember
    FormerMember in reply to wombat.23

    Thank you Gay nice to hear.  Yesterday a lady at the hospital insisted on telling me it was the pits and instructing my husband of my care.  Have to say I get everything going and don't react well to medicines so expecting the worst and hoping for the best or at least your experience.

  • FormerMember
    FormerMember in reply to Ruby Rose

    Thank you for the tips Ruby Rose much appreciated 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Violet - I've just completed 6 rounds of FEC-T (3 FEC and 3 T) and I would not say it was the pits.  Everyone is individual and how they react is how they react.  I know it is not supposed to be a doddle and the reason I was put on it was, as my consultant said "it's the Gold Standard, I want you to have it - you are young and fit (ha ha - I'm 65 and probably reasonably fit for my age).  I expected a hard time but I had minimal side effects.  For my first round, the registrar said I would have 2 shit days then be alright and he was pretty much spot on.  It got a bit harder each time - more achy for a while, chemo cough, that sort of thing, but generally OK after a week.  T was harder in some ways - much more tired and that lasted longer but easier in others (no nausea).  All you can do is go with the flow.  The day I turned up for my first chemo, a woman sitting next to me had just finished her course of FEC-T and she just said - Oh it's fine - you'll be fine.  Just make sure you report any issues and get them sorted and you will fine too.

  • Hi young and fit

    I’ve been rattling around here for 8 months and not seen you before

    Hope the site; friendship and support is being a good pal to you

     I’m 61 I know who would have guessed??? and really have put my body to the test

    I’m with you on the tell them report it because it’s your body. I actually said to my lovely onco man. I’ve been living in this body for 61 years I think I know what’s me. We were discussing my BP. He listened and agreed that we would work within a certain BP range 

    ( just to say I looked back to see BO and not BP. That’s another story)

    Wishing you all a gentle night’s sleep and dreams of joy

    Leolady56

    Life is like a boxing match, defeat is declared not when you fall ..... But when you refuse to stand up again ....... So, I get knocked down but I get up again. x

  • FormerMember
    FormerMember in reply to Leolady56

     - I love the idea of working within a certain BO range. 

    That ought to be agreed in public places, especially on hot days - if you're outside the range, you're removed until you're back within specified limits... 

    Image result for BODY ODOUR gifs

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Cathy   Ha Ha predictive text can be amusing and unpredictable:-) xx 

  • This appeared on my fb feed - looks like a very useful eyebrow pen if anyone is interested.

    xx

    Karen 

  • FormerMember
    FormerMember in reply to toxophilite

    Hi all the lovely ladies of the 'May Chemo club' can't say I'm happy to join you but here I am !!

    I'm starting my chemo on Tuesday, lovely triple of Docetaxol, Herceptin and perjeta, anyone here been or going on same concoction ??

    I'm really starting to c##p myself and would love some friendly advice please xx

  • FormerMember
    FormerMember in reply to Veliz

    Veliz - I have had 4 x EC and Zometa and just started this week with Herceptin and the first of 12 x Paclitaxel (I asked to have this instead of T even though it is weekly as I believe side effects gentler). Zometa has been fine and the Herceptin was not a problem either. Feeling a bit achy today from the Paclitaxel and a little more tired but finding it easier than EC. Everyone is different as I’m sure you have read so hope you manage with minimal side effects. 

    Good luck.