The operation

Well ladies , im sorry iv lost track of all ur comings n goings, so hopfully all is goin t plan. 

Iv bin procrastinating walkin Roland, my son is bein a propper gobshite , (ill not go in to detail ill get angry n go n chin him.HARD!!!!) I never loose my temper , however he as pushed n pushed and pushed. Well guesse who went up like a vocano, i got a tellin off , off my sister , his was worse. Ask if it has  helped NO. So christmas and his birthday are not goin to be as gud has he thinks. Ask if i care NO. !!!!!!

 My partner is a very sensative , extremely clever, patient man , well sed gobshite had him on 1 too. Its not wat wer goin through either he has been like this for around 3- 4 years. 

I just dont like him at the mo. Still love him , dont like him. Iv still a gud few tricks up me sleeve

Watch this space, I grew up 2nd youngest of 9 !!! Bless him he thinks hes won....... .

Today i had fish n chips with 1 of my bosses, we did laugh it was betin. Next a girl i worked with 20+yrs ago walked in she emergrated to austrailia a few yesrs ago now. Well her mum who was the matron wen we worked together was there too. Well we set off it was such a gud couple of hours , then i did the shoppin , cleaned me kitchen widow it wer a shoking disgrace along with the fridge which dint look to healthy either !!!! And washed Roland and his 4 blankets and 3 beds.  Hence Rolland is in the middle of the bed 

I have my wonk off fri , so if im not around u no im on free legal drugs, last time i was off me hed f a gud 5 days. It wer great !!!!!!!! Slept alot too a gud 8-9 days 

 So very borin really hope you reprabates are all ok . 

Glad lurgy has go Leolady , it did take a shine to u eh

Later ladies, chin up. Xxx

Dear Mrs Ox,

Your posts always cheer me up somehow. Reprobates, eh? Riffraff? Love it.

If it's any consolation, I have wanted to murder my three sons at different stages of their troubled adolescence. Children can make you bloody miserable, especially when you're going through something serious. But didn't you know, it's all about THEM, not you.

It will be my youngest son's 29th birthday on Saturday. I sent clothes, as much as I could afford and a card. Declaring my everlasting love, which is true. Now ask me what I got from him for my 60th birthday last Sunday? A text. A bloody text!

I'm going away in the morning to Copenhagen to see my brother and lovely sister in law. I'm finding it impossible to sleep these past weeks.

You hang on in there Mrs Ox.

Pepys xx

Hi ladies

I expect you are all in bed waiting for the sleep fairy to do her magic. 

I’m up pondering today’s events and reading through all of your posts. 

Ok so too much detail to put on here but oncotype results were slap bang in the middle and I mean literally!!  Onco couldn’t not wouldn’t say if chemo would or wouldn’t help me. I could not make a decision under those circumstances so asked what else I could do.

She suggested another test that is unavailable on the NHS at this stage called EndoPredict which only gives you a low or high score for distant reaccurrance in next 10 years, no middle score. 

If I’d known about its availability and cost I would have opted for it to begin with and not had the oncotype test. 

It appears ER+ has a better survival rate over 5 years with hormone treatment than ER-  However ER+ has more chance of reappearing in years 5 to 10 than ER-  hence the chemo question is important because it’s in the latter years it’s more likely to have a bigger impact on the cancer than the first 5. I guess that’s where age comes into this now and why it’s used as part of the NHS predict test and the oncotype one. 

Anyway I will get the results in 10 days or so but will be calling tomorrow and asking them not to call me with them until after the 26th of December, as I want a carefree decision making few days with my family. 

Jolly I just don’t know what to say about you not being called back. I agree with LL and Jammy, I would be ringing every single morning and again 15 minutes before the end of the day if they still haven’t come back to me. Just totally unacceptable :-(

Ali I hope you’re feeling ok tonight. As the other ladies have said, we are all here to hold your hand through this. 

LL pleased to hear the lurgy has gone at last.   

Jammy and mrsox Friday is just around the corner so sending positive thoughts your way. 

I hope I haven’t missed anyone tonight, if I have apologies, I’m absolutely cream crackered after last nights lack of sleep and today’s events. 

Love to you all xxxxxxx

Ladies can I ask if anyone of you have called and spoken to Macmillan help on here? Please don’t feel you have to answer that. 

I just really need some help re this chemo decision from somebody else that isn’t emotionally involved with me. I’m not suggesting for one minute that they make a decision for me but I want to talk to somebody about it and have time to get all of my questions out and possibly answered. Xxxxxxx

Jacks77

Roland woke me up so here we are,.

Now if im reading ur post rite ar you saying that Er- may not cum back and Er+ may cum back in 5 - 10yrs , i have read ur post a gud few times so i do hope im not bein thik. ( for a change did i hear u say) 

All i can add is both mine wer negative for Er , Pr, and HER2 1st nasty was tuberlar, 2nd is I.d.c 3. If thats lucky or not i dont no. However i think its shows no predudice this b@$7@7d disease , I said the same thing to my boss tday about chemo . Im goin to ask wat percentage is too, both my cases there is no node involvement . 

Im glad you fetched this up as it really is turning my brain to mash spuds thinking about it , its an important decision to make . 

I have foned the help line on a couple of occations it was about my welfare meetings with work the 1st time round, they give sound advice, things I wud never have thought of. I still dindnt giv in I wanted my own way and got it. 

Give them a call and if you dont mind wud u let me no wats sed . If you think im bein to forward just say im not easly offended. 

and thankyou for your thoughts its gud to no others understand even tho if i fell over you i wudnt no you , its just nice to no, im truely touched. 

Chin up and enjoy christmas. Xxx

mrsox I’m still up too so here goes, always tougher to write than say. 

I was told that ER+ is obviously treatable with hormone therapy. It has a better chance than ER- in the first 5 years because of that  treatment. 

However in the years 6 to 10 ER+ has a higher risk of coming back and ER- is less likely to if it goes to years 6-10. 

How I take that from her is this, if negative gets past 5 years the outcome fairs better because it’s less likely to come back in the latter stages than positive. 

That’s why they may suggest more for chemo on ER+ as it’s in the later years the benefits are greater to prevent it recurring rather than the first 5. 

Everyone is different because age, size and grade if tumour are thrown into the mix. 

That’s why I have decided to have the further test. Nobody wants chemo but likewise I don’t want it if the % of it not coming back is so low that the side effects of chemo are greater than the benefits. 

My oncotype results were literally in the middle so I was really in the 50/50 decision making part and I just couldn’t do it. 

You’re not thick lovely lady, it’s just a mash of stats and possibles but in truth I don’t think any of us fully understand all of it other than it definitely is a ba@#**d of a disease. 

I will give them a call and see if anyone can add something for me and of course will update you. 

Just remember though ALL of our cancers are different so all of our results and possible treatments could be different too. 

Whatever we all do or do not have going forward,  I feel sure we are all going to be here supporting each other every step of the way. 

Hugs to you xxxxxxx

Totally agree with you . Do what you have to do . 

Sweet dreams lovly lady. Thanks again. Xxx

 Night night to you love and hugs xx

Hi jacks 77 i have rang the helpline numerous times in the last 2 years. The nurses are briliant and will talk everything through with you. Also i have recently joined maggies online and have messaged a nurse on there too. They listened and didnt rush me and they are there anytime. Its worth ago it helped me. Sending hugs xxx

Mr sox you are definately not thick. Breast cancer can be very confusing . Hope you are ok. Xx