The operation

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So in   5 days time I have the operation to remove the tumour - randomly known as Ian.

Why in the last few days have I become incredibly tired and emotional ??
Did anyone else feel the same?
  • I used Aveeno too and no problems really.

    On another note this is a really close friend who has helped me enormously this last 6 months, I think she's amazing. So proud of her.

    www.mirror.co.uk/.../playing-doctor-four-year-old-12301134

    Jac x
  • FormerMember
    FormerMember in reply to Jacmatholmad

    Jac, doesn't matter if its red orange or green, or yellow balls, as you said what it does for you mental health and general wellbeing is immense. I might try having a knock around with Ys again as you've inspired me to try wielding my racquet again, admittedly I'd not been playing much since the summer anyway, but obvs the old PT thing got in the wauy of that too.

  • I used Aloe Vera gel, no additives, which was very helpful for a very itchy and painful rash. Used it again for hands and feet when recently on Capecitabine.

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • Good afternoon ladies from sunny Kent. 

    I have an announcement, for me a big one......... I have started to feel like a human being again!! This is the best I have felt since January, yes tired, yes crap mouth and nausea but I am definitely on the road to getting this chemo out of my system once and for all. 

    I’ve spoken to the RT department and we’ve moved my treatment back a week, she offered more but I just want to get it done and dusted now and an extra week will help lots.

    Spoke to my SIL in Australia this morning and told her about the surprise that was meant to be, she was so happy we’d even thought about doing it and asked if we could wait until nearer the time to cancel. I’ve said no as I just don’t think I will be up to it and I had already changed my RT dates, she fully understood the reasons why. We are going to see if the airline will let us change the flights for the end of the year and if they won’t we will just cancel totally anyway. 

     I've been thinking about you so very much. Thanks for the link on FB I will take a look at it. I’ve got an appointment next Thursday at my GP with the nurse practitioner who’s helped me through from diagnosis, I will ask her about the R1/R2 creams. I have seen them advertised but I think the cost is about £70 which is just too much for most of us and if it is available on prescription then we should be allowed to have it. I do actually get Aveeno from them, I asked once and got it and then when my OH went up for my regular repeat meds there was another bottle in there.

    OH has just informed me that the spring on garage door has gone and he’s had to wedge it shut. Seriously, he lives out there so this is a massive blow to him, I had to feign shock and horror and try to share his anguish lol.

    I hope all of you lovely ladies are feeling as good as you possibly can xxxxxxx

  •  just read the story about your friend, just amazing and heartwarming.

    I have a very good friend who has a band and he’s done several shows for Cancer Research. This year it’s for me so I have of course picked Macmillan. I will be fund raising, ticket selling and raffle prize gathering lol as I can’t sing for love nor money. There will be a dance troupe and other acts and we have a minimum target of £3000 but hope to raise much more than that.

    This site has been my main stay since last September, at all hours of the day and night, without it we wouldn’t all be here supporting and helping each other, laughing and crying together. Way to go Macmillan xxxxxxx 

  •  

    That's fantastic news for you. I have a mountain of Aveeno as every time i see it on offer I buy a bottle. Mr L is do you know how many bottles that is???? Yeah pal I do

    Had a massive giggle at your OH expense I can see  Mr L being the same. He's on a mission to fix en suite shower. I mean it's been like it for 2 years and getting slowly worse. Hey ho! But seems my impending chemo has meant it MUST be done. Well if that's the case I have a very long list for him. Keep him from under my feet

     

    You are also in my thoughts too.

    Isn't it funny ...... having cancer is a bit like having children. We are always wishing they would : eat solids; crawl or walk; talk and start school. And now here we are wishing days away about cancer: next appt; next scan; ct; rt; Not  sure which has been more demanding bringing up children or bringing up cancer!!! Just one of my random ramblings. At least not another bleeping song ladies and gents (gender gap)

    So tomorrow MR ONCO gets me !!!!!!! I am reliably informed by  he is notorious for his lateness. So I'll be posting at midnight when I've emptied the bins and switched off the lights in the consulting rooms. Weeblemum said I need to take a mop and bucket too. 

    Busy weekend ahead. Prosecco Party and friends to stay.

    Take care and be gentle with yourselves

    Leolady56

    Life is like a boxing match, defeat is declared not when you fall ..... But when you refuse to stand up again ....... So, I get knocked down but I get up again. x

  • Jacks77 - Fabulous news I'm so pleased you are feeling better and just think no more poisonous chemo for you woop woop! Hopefully you will be able to go on a flight towards the end of the year but for now you can enjoy starting to feel human again now you've got off the chemo train!

    Leolady - Fingers crossed all goes well with the new Onc tomorrow I'm sure it will and you will have him wrapped around your finger! Pre chemo prosecco party sounds perfect!

    Jacmatholmad - Read your link and your friend is truly inspirational! It' nice to see that you've managed some tennis, exercise is a mood lifter and brings back a sense of normality x

    Aliblue - Hope you are ok, you are in my thoughts and hopefully everything will turn out ok and you can get on with rt! Stay strong lovely x

    JammyR - Hope you've had a lovely day with dh and Libby!

    Well as the weather has been kind to us today in the Staffordshire Moorlands, we have taken the twins and dog to the Manifold Valley on their bikes and we have walked the 4 miles behind them! So we all feel a bit better for the exercise! X

  • Hi ladies... just read all your posts and will post properly myself tomorrow. Just about to have an early night as been on my own with Lib today as DH was at work. Had really nice day but need bed now! She is going out for day with her friend tmrw so I can catch up on the resting! Ali, like others am thinking of you. Jacks, glad you are feeling upbeat... a broken garage door would be a crisis for mr jammy too! Deb - lovely photo, 4 mile walk is brill after T truck. Leo, hope appt goes well my love. Right need to sleeeeep xxx

  • FormerMember
    FormerMember in reply to JammyR

    The good thing is that  's new onco is known for being late for appointments as he gives time for all his patients to say what they need to and he never tries to hurry anyone out of the appointment. He listens to what is said then discusses and encourages patients to be involved in their treatment choices! For that I would wait for as long as it takes! 

    (and I do as I'm lucky enough to have him as my oncologist too!!!) 

    Image result for waiting gif images

    Hopefully it won't be this long!!! 

  • The same one, Weeblemum! I never mind waiting if I know the onco or surgeon is going to give me the time I need. Xx

    Onwards and flatwards (don't do hills) and keep walking if you can!