So in  5 days time I have the operation to remove the tumour - randomly known as Ian.
This is me in about to erupt volcano mode. So sorry if my shouting as I type and if this offends or upsets anyone. This is me losing the plot with Y6 children when they have over stepped the mark. I am now in shouty, angry headteacher mode. AND WHY???????
Letter for me to have an Onco appt on 10th April. At the same place as I met useless piece of BLEEEEEEEEEEP
Generic letter with NO indication as to whether it will be good guy Onco or not. I called BCN yesterday and no reply from them either
I will be by 10th April 3 months post op.
Phew that's better
Leolady56 not at all ladylike today
Life is like a boxing match, defeat is declared not when you fall ..... But when you refuse to stand up again ....... So, I get knocked down but I get up again. x
Leolady - Oh my goodness erupt away you have every bleeping right to be angry and frustrated at the way you have been treated! Im' not overly impressed with the bc nurses as I've left messages and they've not responded until I've rang again then its' not been my bc nurse! When you do manage to get hold of said bc nurse I'm sure they will understand you are never going to see the bleep Onc and quite rightly so! To wait until 10th April isn't on either I think you've waited and been messed about enough! Im' angry for you, I have been angry at the beginning of this bc nitemare too as my gp when I went with a lump in my armpit told me it wasn't anything to worry about and to go home! 4 months go by and it got bigger so I insisted to get it scanned and the rest is history shall we say which if it was caught earlier it may not have affected as many lymph nodes! Very frustrating! I'm sure when they hear how angry you are they will sort something for you, those who shout loudest get heard as the saying goes! Fingers crossed for you and a big virtual hug, on a brighter note there will be some muscular legs on a rugby pitch later to calm the lava flow! Deb xx
@leolady that is absolutely bleeping ridiculous. I wish you could hop th border and join me at the Parapet!
i don't think you can leave that and first thing Monday I should bleeping call that BCN and whoever else's number you have and let them know a formal complaint already gone in! A second one about to follow! I'll write it myself bud. Xx
so sorry, sending you massive hugs
Oh my Leolady56 that really isn’t good enough. With the 5 week wait for results that never happened to add this time frame on is just unacceptable, you should be seeing a different onco immediately but then we all know that.
3 months post op and I’m guessing at that appointment they will book you for chemo which adds a further couple of weeks at least. They need to bleeping well prebook your chemo slots time wise and get you in to to see the onco bleeping fast!!!
Nothing I can add Leo that the ladies haven't said... unacceptable and beyond belief. This is csncer and people's lives and if the MDT were so bleeping sure you need chemo them that needs to start within the required timeframe from surgery. Bleeping morons. What worries me is that you and Mr Leo are clearly not going to sit around and wait 4 weeks and will be on BCN case again on Monday giving them all bleeping hell until this mess is sorted but somebody else might just have accepted that.
Deb that is terrible too that your GP delayed you getting treatment. I hope you complained.
Todays thought is we should start a virtual swear box for our bleeps... bet we'd be able to fund an Operation thread holiday to the Bahamas in no time.
On a less sweary note received the most beautiful gift today, a framed trendy family tree print, from my 5 lovley mum friends I met when Libby was born. Came with a note saying just to cheer me up during chemo and that they are behind me every step of the way. Very touching.
And on an even less sweary note am going out for tea to our fave place to eat, just me, hubby and the Libby one. So nice to have a normal few days and get out of the house.
xx
Awww JammyR yur friends are lovely, got me weeping here !
my sister gave me yesterday a bag of gifts. She said they are for me to open one at a time when I feel the need for cheering up during the next 6weeks before oncologist appointment.
Well ive just baked a birthday cake for daughter , today she's a teenager , whilst watching the rugby. We have finally moved downstairs into our new extension which is all open plan and absolutely gorgeous, I'm so pleased with it. Could have done without the build coinciding with the BC but it's done :-)
sorry about the rugby scoreline for all you England fans
What you need to do is , tell your breast cancer nurse you have very detailed letters to . Nursing and Midwiffery council, and the General medical counsil, and N.H.S England, explaining that you have been pissed about for to long. Then ask WHY you should NOT post them. Watch her face drop and watch her squirm. Iv an x collegue who works for n.h.s england she was all for me posting letters. I thought just give the threat that I have them see what happens. So far its worked
I did the above, I 'v had no probs since . I have the letters just not posted them, as they have been on there toes ever since.
Its not good enough end of. I work for the n.h.s, and work hard.
Its not on its not a bloody virus your contending with is it? Give them a bloody good shake !!!!!!
Im so f@€king angry for you you luv.
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