AWAKE.........

Hi Sal, I'm not surprised that you burst into tears! The level of stress, worry, then relief must have been immense! We were all with you in heart and spirit! Xxx

Hi

I have been reading and following this thread. Happy for the news for you so big hugs from me xx

Hi London Lass. So pleased to hear your good news. What a relief for you. Time to relax now and enjoy meeting up with your friends on Saturday and all those hugs awaiting you x.

Have any of you heard about the new store to be opening up soon it’s called the bunnymarket.

When I saw this It made me laugh. I hope I can sleep tonight, my eyes are so heavy now. 

Really pleased to hear your good news LondonLass I was at Albert Dock and thinking about you then I saw Karen's post and started grinning from ear to ear and then the day was complete :)

Excellent news London Lass, soooooo pleased for you

Love Shey x

Brilliant news Sal. Let's hope it continues for years and years. Massive hug from me.

Again hurray for all the brilliant news today. Remember though if you are not feeling brilliant, it isn't bringing the mood down to say so and we have plenty more hugs in store to wrap around you too.

Well I have had a strange few days...my Fibromyalgia making itself known. Actually I am surprised its taken so long with all the err...'emotional adjustment' to my man being around and all the physical to-ing and fro-ing and sorting and hauling.

Well to manage my Fibromyalgia I used to take paracetmol and ibuprofen and in theory a hefty dose of amitriptyline at night...however, since needing and having gastrectomy, I don't take ibuprofen and I haven't taken the night pills since surgery.  I had already found I needed to take them earlier and earlier to get to sleep and stayed fuzzed the next day. There is already fibro fog of the brain. Also I needed to be awake through the night in hospital and after to clear the fluid build up on my chest.

So, cut to the last few days when fibro dials up every sense so all my nerves are hanging out and even sounds, never mind touch, are too much...paracetmol needed some reinforcements. So I go to my pharmacy, handily next door : )

It seems there's not much OTC for someone with stomach issues that also can't tolerate opiates AT ALL...prescription amitriptyline...'ooh I have that' says me. Some may recall that, stupidly, I mistakenly took them instead of my thyroid meds the other day and zoned out then slept forever ahem, so taking just one to ease symptoms rather than three, was the plan.

Zoned our then conked out. Next day I tried half a tablet..umm...won't be doing that again...all it lessened was my ability to hold it together! Picture the scene ..I am walking with my man to his, carrying stuff. He had an old holdall bag full of rubbish. Bin situation been critical at mine for weeks so I assume it going in bin at his. He leaves it outside a shabby back gate en route. I am furious and say can't leave there but have to keep walking with the stuff I had. I knew I would pick it up on way back. I notice he had my Xmas tree stand among  his stuff and I also suspect he had stealthily got rid if some my hoarding as he sees it. We get through his front door, I announce I going back but surprised, he asks why. I did attempt stoicism and intelligence for about a minute then WAAAAGH!! Sheeeeesh full on banshee sobbing wreck! 

To make it worse...I didn't even have my door key so had to wait for him...he was stunned then brilliant ...for about 2 minutes..then he went off to fit entrance carpet ...then normal service resumed and he returned petulant saying wasn't in mood anymore and just going etc etc.

Soooo won't be doing the half a tablet : ) ssshhh the fibro has dialed down a bit,  though getting caught in the sleet tonight, carrying shopping with no gloves or, ironically, shopping trolley ( which is moving his stuff) my hands were excruciating when got in doors ...and although I leaping about etc...my man got a sticky star for trying to help...he got sleeted on too and his back giving lots of grief.

Well if that hasn't put you to sleep, hope sleep comes soon 

Take care

Oh gosh  what a lot of big stuff to deal with.  Thinking of you and hoping the sleep fairy arrived. The AWAKE devil has come back for me, but going to try and rest my eyes now before the 6am work alarm.xxx

Good Morning All, Thank you for all the kind posts and pm you sent to me. I've been following the thread and am so pleased for everyone who has had good news. I notice mrsox is still not on and hope you are ok? Well an update on what's happening..get a cuppa this could be long ....

Both my bcn and onc are on holiday this week so haven't been able to get an apt until the 11th. It's my fault I didn't know about the lung problem... I went through all the letters I've received to see if it was mentioned and in one from Sept 2017 to my gp right at the bottom after all my diagnosis and treatments it says 'for repeat ct scan for follow up of indeterminate pulmonary nodules around March 2018'...I either didn't see it/it didn't register but it was just at the end of chemo so not surprised. I phoned gp ( he is amazing and called right back) he said apparently the nodules were too small to biopsy and although the latest scan had shown a SLIGHT growth they were still very small. He thought the bcn was wrong to say anything about mets as they could be nothing and until they got to the size to biopsy will just be kept an eye on and not to worry. He couldn't comment on the shoulder as he didn't have the mri results available.That eased the worry a lot but really annoyed with bcn.

My macmillan nurse came yesterday to give my Herceptin injection and I mentioned all this to her.She's from a different hospital so doesn't know my bcn only my onc. She said she was almost positive that I would have been sent for by the onc if it was anything desperate... I tend to agree as the onc is like that, she phoned me when I was on holiday just to reassure me of my node results so I didn't worry. I feel a lot calmer now and will face whatever is coming but will also tell onc what bcn has put me through and if it's all for nothing I will take it further.. I wouldn't want anyone else going through this hell. Will find all out on the 11th.

My arm is still really painful and gp has upped the morphine so I am sleeping a lot except at night because can't lie on it so it wakes me constantly.

As for other news I'm off to Ireland this weekend to see the gkids! Was hoping to go for Easter but the flights had tripled in price and I would've been too upset anyway.. I haven't told son about this episode as want to wait until anything confirmed.

Phew... that's about it for now.. will keep you posted.... hope you all have a great time at the London meet and Sal I might borrow LP next weds if he's free.

Lots of love to all you wonderful people who have kept me going this last week.

xx