AWAKE.........

Hi all, hope you are all still sleeping, I woke up and am wide awake, don't know why because I feel absolutely exhausted. Had a whole day yesterday without a nap! I had to fight it late afternoon and I think today is going to be a struggle, but at least I managed it! Could this be a sign that things are improving? I'm not sure! But even if it's not, it was nice to enjoy a day at my sisters being 'normal' and awake just like everyone else

I realised when I woke up this morning just how quickly the weekend has gone. So my latest CT scan results is now just days away! Now I don't feel any worse than I felt last scan, so that makes me 99% sure things remain stable! I'd like a miracle and for them to say Thr whole area has cleared, but am learning that hoping for stable is more than enough!

I think I am ready to discuss starting the bone strengthening drug, once the gum biopsy has been done and sorted in May! I really would like to see if that would help me reduce down on the pain meds I take, which in turn MIGHT help with the fatigue.........you never know! I can but hope!

I just want to start 'living' again. I want/need more out of life than just existing! So fingers crossed this drug, might be able to help me achieve this, I hope!!

Well that was a huge piece of babble to start the day! I shall leave you in peace now! If you reached this far without falling asleep, HAPPY EASTER MONDAY! Hope you enjoy another day of rest! Full of fun and chocolate! Love to all. Xxxxxx                                

LondonLass....Hi..I was awake until 5am so we couldve done a Skype thingy!!

you are such a kind and lovely person and I really hope that your tablets get sorted,and your scan is ok.

i do hope you can start”living “again....

i wish I could wave a little magic wand for you you have so much to cope with ....

luv Cannon xxx

Hello LondonLass, I do hope your scan results do prove things improving. I hope you have a good day today. And isn't frustrating when your totally knackered but don't sleep well, or even when you have slept you still feel knackered. Fingers crossed for you. Sending you some gentle hugs, you are so supportive to everyone so now is your turn.

Hi Sal LondonLass Happy Easter Monday to you also, I’m getting to sleep at 2:00 am now which is an improvement on 4:00am. I hope that the scans you have will show a definite improvement and that you get stronger day by day. Lots of Love.Judith xx

Thankyou snowys mum really hoping its gone now i emailed mcmillian to see if they could sort it out. I think I've fixed part of it now by removing it as part of my signature. Thinking of you all today I'm a bit behind again. Xx

Hi  thinking of you and hope you are ok ? Judith xx

Thanks Ladies, this weekend has gone by far too quickly. Which should be a good thing, BUT it means my appointment is not far away and thats a bit scary! I know I shall feel better once I've been and received hopefully Stable news, although right now I,just feel sick. I have the trip to London to look forward to and I don't want anything to spoil it! Well I suppose what will be will be!

, I hope you have an appointment to explain things properly for you and to also give you a treatmeng plan! Don't forget we are all here for you when you feel up to it! Xxx

Love to everyone else! Hope it's been a great weekend for you all. Xxx

Hi LondonLass when is your appointment for scan results? Thinking of you and hoping and praying for favourable outcomes. It's great you're considering the bone strengthening drugs. I believe anything is possible and I'm willing those areas to have gone smaller. 

Loads of love coming your way from me and Scooter.

Thanks Helen and Scooter, my appointment is on Wednesday at 10.20, if it's on time!! Hope you are doing okay. ((((((((GENTLE HUGS))))))) xxxx

Will have everything crossed for you on Wednesday LondonLass! Hopefully it'll bring good news...