AWAKE.........

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  •   you've done amazing. Well done for agreeing to another round. Course you have a purpose, you've an inspiration xxx

    Helen
  • Oh  , well done my lovely! Is it Ribociclib? My Onc is thinking about Abemaciclib for me. and yes, how lovely that you were able to give that lady hope for her daughter.

    night night Fruit Loops, sleep well and stay safe, plenty of sleepy fairy dust for all who wish

     hugs xxx

    Moomy

  • Hi  , yes it is Ribociclib and I’ll have Fulvestrant injections every 4 wks along side it! Plus the Zoladex every 3wks! 

    Sounds like you will be on one of the drugs from the same ‘family’! Not sure the difference!  But can imagine they have the same sort of side effects etc! 
    I’ll continue with these drugs until they stop working or side effects get too bad…. Whichever happens first I suppose! 
    Not sure how long I’ll have to wait to start the treatment, but part of me is saying, I’m in no hurry take your time and part of me is saying, get a move on before I change my mind!! 

    Good Luck with your Radiotherapy Hun, really hope it goes well and they give you some good cream to prevent any skin damage, as much as they can! Sending (((((Hugs)))) your way!

      I hope you had a safe trip home from your hols. Looks like you had a lovely time and some amazing weather (if you like the heat)! Bit hot for me! But today is meant to be cooler Fingers crossed

    Sending much love to all the Fruit Loops. Sal xxxx

  • Bless you  you are such a good person. I'm so sorry to read about all you are going through again, but you are an inspiration to all of us. We are all here for you.

  • Sending lots of love to all who are going through so much just now…..

    Night night Fruit Loops, sleep well and stay safe, plenty of sleepy fairy dust for all who wish

    hugs xxx

    Moomy

  • Thank you  for such a sweet message. After a very trying day, it brought a tear to my eyes. 

    So in fact it’s been a tough week, as you all know from my ‘moaning’. However whats made it worse is the fact that one of my sisters  hasn’t even had the decency to ask how things went or how I’m doing Cry I’m going through all this and trying so hard to cope with everything and she doesn’t give a toss! It just hurts! 
    Don’t get me wrong, I don’t need molly-coddling. In fact that would drive me nuts! But it would have been nice just for her to ask, how I got on!  

    But I am thankful that I have another Sister who does care. She drove me to my appointment on Wednesday and then asked after me, in the evening. I’ve also got a couple of lovely friends who asked after me. So I am truly grateful for that. 

    Anyway, just feeling a bit stressed with it all today. Started this morning with a call at 8.45 saying my appointment with treatment clinic would be week after next and that I would see the nurse, talk through the treatment plan and receive first injection and drugs!! Well that was a slap of reality to start the day! 
    Once off the phone and after checking my diary I realised that date would mean I would be due an injection during the 2nd week of our holiday booked for September! So I had a small meltdown over life and treatment just being too complicated etc etc. then I did the sensible thing, I emailed my BCN and asked if she might be able to sort things for me! Bless her heart she said leave it with her and she would see what she can do! So fingers crossed she’ll sort things! 
    The whole thought of these injections, plus tablets and blood tests and ECG’s for the first few months, just blows my mind. However I have been living with 3 weekly Zoladex injections for the last 8.5 years. So I should be used to it…..although now it’s a bloody 3 wkly jab and a 4 weekly one Flushed What have I signed up too!!! 

    Anyway I know this is the best thing for me and I have to at least try it! So I have my Big Girl pants on and I WILL get through these coming weeks, while I get used to my new routine! And anymore Hissy fits and I know where to go……

    Let’s hope I can behave myself! 

    Okay, now I’ve got all that off my chest. I should head to bed.

    Sending much love to ALL the Fruit Loops. Special ((((HUGS))))) to  Hope you feel better soon Hun.

    Night night Fruit Loops. Sal xxxxxx

  • Hi London Lass that does sound like a lot. Where is your holiday? You must feel like a pin cushion as they used to say. I hope you do something for you everyday. Distraction is the best thing. I have a brother I can talk to and one who is awful. I have had to l put him behind me now. 

    Love your body just the way it is, it took me a while. Prayers for all the healing you need. You will be on the other side of this looking back. I hope they can make it tolerable for you. 

  • Oh bless you dear  ! Well of course you know that saying ‘you can choose your friends but are stuck with your family’! I hope that sister sees sense soon? 

    Sending hugs xxx

    Moomy

  • Night night dear Fruit Loops, sleep well and stay safe, plenty of sleepy fairy dust for all who wish

     hugs xxx

    Moomy

  •   I know people say God/The universe doesn't give us more than we can bare but they could give you a break.  it's great you could be a positive influence on the mother & daughter it helps them & you.

    Night night all xx