AWAKE.........

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  • Glad you got results  I suspect your mind is in a total spin though. Did you ask them what they suggested was the best way forward for you? If you need, maybe after you’ve been able to ‘sleep on it’, perhaps phone to talk to your BCN and let her lead you through the way forward, she will know what may be the best treatment route, and will help you sort it out in your mind. 

    Hugs xxx

    Moomy

  • They said the prognosis post lymph removal is the same as with radio its just what id prefer - mind wise its removal, but chance of lymphodema is at 20-30%. They wont decide for me, its just up to me. If the scan would have showed it there they'd have removed, so Im just trying to think that theyd have done it anyway had they known it was there. Lot to take on board

    Ninsim Heart️

  • Night night dear Fruit Loops, sleep well and stay safe, plenty of sleepy fairy dust for all who wish

    hugs xxx

    Moomy

  • Morning lovely Fruit Loops, hope you are all doing as well as you can! Just wanted to say Hi and to remind you all, hmmm what was it I wanted to remind you of, let me think……..

    Nope I can’t remember JoyRoflJoyRoflJoyRoflJoy

    So I’ll just say Have a good day! Oh and share this…..

    I was going to say that’s exactly how Bella is with the Whippy cream, but who am I kidding! That’s exactly how I AM with whippy cream

    Sending Lots of Love to all. Sal xxxxxx

    p.s see how good I’m being! Not thinking about my MRI on Dec 30th or appt in Jan at all Flushed okay maybe it’s on my mind, just a little bit! But I’m trying hard not too! 

     Pleased to hear you are happy with your decision to have a mastectomy as treatment. Now it’s just another decision to make! My suggestion is like  suggested, talk to BCN and then look at the pros and cons for both and then finally go with whichever option YOU can live with, without regrets! As far as I know both options would remove or kill any possible cancer cells. Even back 10years ago when I had my treatment they were starting to investigate whether node removal was necessary or if Radiotherapy would have just as positive an outcome! Although am I right in thinking even if you have Radiotherapy you still need to be cautious about Lymphoedema? So no blood pressure readings or needles in that arm? Worth asking your nurse! 
    If after asking your nurse you still aren’t sure arrange an appointment with your surgeon again and ask them what they would recommend if it was there mother or sister in your situation. Best way to get an ‘honest’ answer! Sending (((((hugs)))) your way! Xxxx

  • Hi all 

    Heard a doctor on TV say to have inner peace we should always finish things we start and we all could use more calm in our lives. So I looked through my house to find things I’d started and hadn't finished and I finished off a bottle of Merlot, a bottle of Chardonnay, a bodle of Baileys, a butle of wum, tha mainder of Valiumun srciptuns an a box a chocletz. Yu haf no idr how feckin fablus I feel rite now. Sned this to all who need inner piss. An telum u luvum. And two al hve a Marry CrispmouseRoflRoflRofl

    One step at a time and ...Breathe !
    xoxox
    Margaret
  •   that has made me spit out my cup of tea!!!!! Admin...PLEASE can we have a laugh emoji???

  •   that made me giggle, so glad I didn’t have a mouthful at the times! JoyJoyJoy

    Moomy

  • Glad you got your results  and that you made the right decision having a mastectomy. So many decisions for you to make. I love going to Wales. My husband is Welsh, and his father didn’t learn English until he was a teenager.

       re “am I right in thinking even if you have Radiotherapy you still need to be cautious about Lymphoedema? So no blood pressure readings or needles in that arm”. I had left side RT in July and no one mentioned that to me, I’ve had a Covid and a Flu jab in my left arm. Maybe I shouldn’t have done. Will make sure I get my Shingles one in my right arm. I’ll be googling now to see what I can find out.

    My bone scan appointment has come through for next week.  I’ve had pains at rest for months in both thighs, rib and pelvis. I’m pleased they’re going to check it out.

    Hugs to all xx

  •   and  I'm the same..left hand RT, but no one told me not to have injections in that arm or take BP from it?

  • Ive been told with the centinel node biopsy plus mastectomy to always vaccinate and have blood pressure taken in the opposite arm. 

      heck! We'll send paracteamol and a fry up through in the morning!

      the team have said they cant give an opinion as the results are the same- the surgeon said i have no preference. I'm listening to Liz O'Riordan with Dr.Melanie Thomas discussing lymphodema. Keeping weight down below 25 bmi (this I need to do), skincare massage of arm, excercise help but its just luck of the draw with it really

    Ninsim Heart️